A huge thank you to everyone who responded. All of your suggestions were great! ____________________________ Catherine M. Reiter, MA, AHIP Head of Collection Development and Assistant Professor Denison Memorial Library Box A-003, University of Colorado at Denver and Health Sciences Center 4200 East Ninth Avenue / Denver, CO 80262-0003 / 303-315-6444 / [log in to unmask] Original Question: I need to put together a list ASAP of resources (books, journals, databases) related to Down Syndrome. Can anyone point me to a good resource? Responses: 1. Woodbine House has several parent-oriented books of various disabilities. 2. If you can get your hands on The Complete Directory for People with Chronic Illness 7th ed., Grey House Publishing, 2005/06, it would help you greatly. This a great comprehensive resource including national & state associations, adult & children's books, web sites, etc. 3. Here in Cleveland, we have a long list of books at our public library. You did not say if this list was for physicians only or the public. Also try the local chapter on Downs. They also may have a list of information for you. 4. All people with Down Syndrome, if they live long enough, get Alzheimer's disease. We have a special bibliography related to Down and Alzheimer's at http://www.alz.org/Resources/Resources/rtrldowns.asp <http://www.alz.org/Resources/Resources/rtrldowns.asp> . If you are specifically looking for resources related to a younger patient, The Arc is a great organizational resource - also NOAH and MedlinePlus. 5. This link may help you: http://www.ndss.org/content.cfm?fuseaction=InfoRes.SrchResMat <http://www.ndss.org/content.cfm?fuseaction=InfoRes.SrchResMat> . I went to the NDSS through MedlinePlus to get to it. 6. PsycINFO contains more than 3,000 records of journal articles, books, etc regarding Down Syndrome. It considers the behavioral aspects. 7. Try these: http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=190685 <http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=190685> http://ghr.nlm.nih.gov/condition=downsyndrome <http://ghr.nlm.nih.gov/condition=downsyndrome> http://www.nlm.nih.gov/medlineplus/downsyndrome.html <http://www.nlm.nih.gov/medlineplus/downsyndrome.html> http://www.nlm.nih.gov/medlineplus/ency/article/000997.htm <http://www.nlm.nih.gov/medlineplus/ency/article/000997.htm> http://www.guideline.gov/summary/summary.aspx?doc_id=2778 <http://www.guideline.gov/summary/summary.aspx?doc_id=2778> http://www.ndss.org/ <http://www.ndss.org/> 8. National Down Syndrome Society is good -- http://www.ndss.org/ <http://www.ndss.org/> -- we purchased their info kit for health professionals and the physician who has checked it out said it was pretty good. 9. I have just posted to Net-Gold a bibliography of resource articles and books as well as some web site listings to the Net-Gold discussion group that you can access at this Net-Gold URL: http://groups.yahoo.com/group/Net-Gold/message/9774 <http://groups.yahoo.com/group/Net-Gold/message/9774> 10. We have a small Down Syndrome collection - see our website: http://uscm.med.sc.edu/CDR/downsyndrome.html <http://uscm.med.sc.edu/CDR/downsyndrome.html>
