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September 2020, Week 1

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Thomas Krichel <[log in to unmask]>
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Thomas Krichel <[log in to unmask]>
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Sun, 6 Sep 2020 04:58:11 +0000
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bims-librar       Biomed News on Biomedical librarianship
─────────────────────────────┐
Issue of 2020‒09‒06          │ 
thirteen papers selected by  │
Thomas Krichel (Open Library │
 Society)                    │
 http://e.biomed.news/librar │
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                             │
                             └──────────────────────────────────────────────────
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 1. Library Jargon Creates Barriers for Potential Users of Health Library 
     and Information Services.
 2. Ensuring the rigor in systematic reviews: Part 2, preparation is key: 
     The question and the protocol.
 3. Searching for online health information instead of seeing a physician: 
     a cross-sectional study among high school students in Belgrade, Serbia.
 4. Social media as a tool for scientific updating at the time of COVID 
     pandemic: Results from a national survey in Italy.
 5. Information on the COVID-19 Pandemic in Daily Newspapers' Front Pages: 
     Case Study of Spain and Italy.
 6. Preference and Trust: An Investigation of Information Source of 
     COVID-19 Among People Over 50 Years.
 7. Pelvic vein embolization: an assessment of the readability and quality 
     of online information for patients.
 8. Health literacy among neurosurgery and other surgical subspecialties: 
     Readability of online patient materials found with Google.
 9. Quality of Online Information Regarding Cervical Cancer.
10. Readability of Online Patient Educational Materials for Coronary 
     Artery Calcium Scans and Implications for Health Disparities.
11. The usefulness and validity of English-language videos on YouTube as 
     an educational resource for spondyloarthritis.
12. Using Xigua Video as a Source of Information on Breast Cancer: 
     Content Analysis.
13. Internet search trends and online awareness of skin cancer and 
     melanoma in the Republic of Ireland and the UK.

────────────────────────────────────────────────────────────────────────────────

                                                Health Info Libr J. 2020 Aug 31.
 1. Library Jargon Creates Barriers for Potential Users of Health Library 
     and Information Services.
   Kiely H
  This paper is based on Helen Kiely's Masters dissertation on MA in Library 
  and Information Service Management, successfully completed at the University 
  of Sheffield in 2018. The aim of the study was to explore the extent to 
  which users of a health care library service understood common terminology 
  used by clinical librarians/information professionals. A survey was 
  developed based on the terminology used for common services and was 
  distributed to staff and students at an acute NHS Foundation Trust. One 
  hundred and eight people participated over a four week period and were asked 
  to provide definitions to the terms. Analysis of the responses for accuracy 
  and common themes indicates that jargon can be a barrier to user access and 
  recommendations are made with respect to the need for outreach to users and 
  the language used in this practice for creating better accessibility. F.J.
   Keywords: library and information professionals; library outreach; library 
    services; surveys
  DOI: https://doi.org/10.1111/hir.12328
  URL: http://pubmed.ncbi.nlm.nih.gov/32866346

      Heart Lung. 2020 Aug 26. pii: S0147-9563(20)30299-5. [Epub ahead of print]
 2. Ensuring the rigor in systematic reviews: Part 2, preparation is key: 
     The question and the protocol.
   Brackett A, Batten J
   Keywords: Librarian; Meta-analysis; Protocol; Systematic review
  DOI: https://doi.org/10.1016/j.hrtlng.2020.07.001
  URL: http://pubmed.ncbi.nlm.nih.gov/32861558

                                               Int J Public Health. 2020 Sep 02.
 3. Searching for online health information instead of seeing a physician: 
     a cross-sectional study among high school students in Belgrade, Serbia.
   Gazibara T, Cakic J, Cakic M, Grgurevic A, Pekmezovic T
  OBJECTIVES: Fear of being judged and stigmatized has been reported as 
  barriers for adolescents to timely use healthcare services. The objective of 
  this study was to examine the prevalence and factors associated with online 
  health information seeking instead of seeing a physician among high school 
  students.
   METHODS: A cross-sectional questionnaire-based study was carried out in four 
  out of 21 public high schools in Belgrade, from December 2016 to January 
  2017 (n = 702, 41.9% males, 15-19 years old). The association of 
  socio-demographic characteristics, digital literacy, interest in health 
  topics and the use of online platforms with health information seeking was 
  analysed using multinomial regression models.
   RESULTS: More than half of high school students (56.6%) search for online 
  health information instead of seeking a physician. Being male, having 
  lower-grade point average, attending humanities-languages program, older age 
  at first Internet use, better e-health literacy, use of smartphones, 
  interest in sexually transmitted diseases and mental health, use of websites 
  run by physicians and Youtube was associated with online health information 
  seeking instead of in-person visit to a physician.
   CONCLUSIONS: Setting up safe and supportive online platform could help 
  adolescents improve health education. Physicians who see adolescent patients 
  should encourage discussions about sensitive health topics.
   Keywords: Adolescents; Health information; Information seeking behaviour; 
    Internet; e-Health
  DOI: https://doi.org/10.1007/s00038-020-01471-7
  URL: http://pubmed.ncbi.nlm.nih.gov/32876767

                                                 PLoS One. 2020 ;15(9): e0238414
 4. Social media as a tool for scientific updating at the time of COVID 
     pandemic: Results from a national survey in Italy.
   Murri R, Segala FV, Del Vecchio P, Cingolani A, Taddei E, Micheli G, 
   Fantoni M,
  In the face of the rapid evolution of the COVID-19 pandemic, healthcare 
  professionals on the frontline are in urgent need of frequent updates in the 
  accomplishment of their practice. Hence, clinicians started to search for 
  prompt, valid information on sources that are parallel to academic journals. 
  Aim of this work is to investigate the extent of this phenomenon. We 
  administered an anonymous online cross-sectional survey to 645 Italian 
  clinicians. Target of the survey were all medical figures potentially 
  involved in the management of COVID-19 cases. 369 questionnaires were 
  returned. 19.5% (n = 72) of respondents were younger than 30 years-old; 
  49,3% (n = 182) worked in Infectious Diseases, Internal Medicine or 
  Respiratory Medicine departments, 11.5% (n = 42) in Intensive Care Unit and 
  7.4% (n = 27) were general practitioner. 70% (n = 261) of respondents 
  reported that their use of social media to seek medical information 
  increased during the pandemic. 39.3% (n = 145) consistently consulted 
  Facebook groups and 53.1% (n = 196) Whatsapp chats. 47% (n = 174) of 
  respondents reported that information shared on social media had a 
  consistent impact on their daily practice. In the present study, we found no 
  difference in social media usage between age groups or medical specialties. 
  Given the urgent need for scientific update during the present pandemic, 
  these findings may help understanding how clinicians access new evidences 
  and implement them in their daily practice.
  DOI: https://doi.org/10.1371/journal.pone.0238414
  URL: http://pubmed.ncbi.nlm.nih.gov/32881933

                      Int J Environ Res Public Health. 2020 Aug 31. pii: E6330. 
 5. Information on the COVID-19 Pandemic in Daily Newspapers' Front Pages: 
     Case Study of Spain and Italy.
   Tejedor S, Cervi L, Tusa F, Portales M, Zabotina M
  Spain and Italy are amongst the European countries where the COVID-19 
  pandemic has produced its major impact and where lockdown measures have been 
  the harshest. This research aims at understanding how the corona crisis has 
  been represented in Spanish and Italian media, focusing on reference 
  newspapers. The study analyzes 72 front pages of El País and El Mundo in 
  Spain and Italy's Corriere della Sera and La Repubblica, collecting 710 news 
  items and 3456 data evidences employing a mixed method (both qualitative and 
  quantitative) based on content analysis and hemerographic analysis. Results 
  show a predominance of informative journalistic genres (especially brief and 
  news), while the visual framing emerging from the photographic choice, tend 
  to foster humanization through an emotional representation of the pandemic. 
  Politicians are the most represented actors, showing a high degree of 
  politicization of the crisis.
   Keywords: COVID-19; journalism; media; newspapers
  DOI: https://doi.org/10.3390/ijerph17176330
  URL: http://pubmed.ncbi.nlm.nih.gov/32878092

                         Asia Pac J Public Health. 2020 Aug 30. 1010539520956428
 6. Preference and Trust: An Investigation of Information Source of 
     COVID-19 Among People Over 50 Years.
   Yu N, Jiang Z
  A cross-sectional survey that reached 21 out of 34 provinces of China was 
  conducted during the coronavirus disease 2019 (COVID-19) outbreak in China. 
  The study discovered different patterns of source preference and trust among 
  people over 50 years. The data suggested the critical role of television and 
  family as preferred and trustworthy information sources of the pandemic. The 
  potential roles of social media and news apps for distributing COVID-19 
  information were also discovered. Additionally, age, education, marriage 
  status, health status, and vision health can influence choices of 
  information sources during a pandemic.
   Keywords: COVID-19; information source; pandemic; preference; trust
  DOI: https://doi.org/10.1177/1010539520956428
  URL: http://pubmed.ncbi.nlm.nih.gov/32864981

                                            CVIR Endovasc. 2020 Oct 18. 3(1): 52
 7. Pelvic vein embolization: an assessment of the readability and quality 
     of online information for patients.
   Lee RJ, O'Neill DC, Brassil M, Alderson J, Lee MJ
  INTRODUCTION: Pelvic congestion syndrome is a controversial topic. Pelvic 
  vein embolization is a minimally invasive treatment for pelvic congestion 
  syndrome. We aimed to assess the quality of information available on the 
  Internet and determine how accessible information provided by the main IR 
  societies was to patients.
   MATERIALS AND METHODS: The most commonly used term relating to pelvic vein 
  embolization was searched across the five most-used English language search 
  engines, with the first 25 web pages returned by each engine included for 
  analysis. Duplicate web pages, nontext content and web pages behind paywalls 
  were excluded. Web pages were analyzed for quality and readability using 
  validated tools: DISCERN score, JAMA Benchmark Criteria, HONcode 
  Certification, Flesch Reading Ease Score, Flesch-Kincaid Grade Level, and 
  Gunning-Fog Index.
   RESULTS: The most common applicable term was "Pelvic Vein Embolization". 
  Mean DISCERN quality of information provided by websites is "fair". 
  Flesh-Kincaid readability tests and Gunning-Fog Index demonstrated an 
  average "college level" of reading ease. HON code certification was 
  demonstrated in less than one third of web pages. Professional societies and 
  scientific journals demonstrated the highest average JAMA and DISCERN 
  scores, while for-profit organizations and healthcare providers demonstrated 
  the lowest. Only information from 1 of 3 interventional societies was 
  included in the first 25 search engine pages.
   CONCLUSION: The quality of information available online to patients is 
  "fair" and outside of scientific journals the majority of web pages do not 
  meet the JAMA benchmark criteria. These findings call for the production of 
  high-quality and comprehensible content regarding interventional radiology, 
  where physicians can reliably direct their patients for information.
   Keywords: Embolization; Information; Internet; Online; Patient; Pelvic 
    congestion syndrome; Pelvic vein
  DOI: https://doi.org/10.1186/s42155-020-00143-0
  URL: http://pubmed.ncbi.nlm.nih.gov/32886198

                Clin Neurol Neurosurg. 2020 Aug 22. pii: S0303-8467(20)30484-4. 
 8. Health literacy among neurosurgery and other surgical subspecialties: 
     Readability of online patient materials found with Google.
   Behmer Hansen R, Gold J, Lad M, Gupta R, Ganapa S, Mammis A
  OBJECTIVE: To both determine whether the most high-yield online patient 
  materials for surgical specialties meet the 6th grade readability level 
  recommended by the National Institutes of Health (NIH) and American Medical 
  Association (AMA), and to discover differences in readability across 
  specialties. We hypothesize average readability scores will exceed an 11th 
  grade level.
   METHODS: The top five most common procedures for each of seven surgical 
  specialties (neurological, orthopedic, plastic, general, thoracic, 
  pediatric, and vascular) were searched using an incognito Google query to 
  minimize location bias. The text from the top five patient-relevant links 
  per procedure, excluding Wikipedia, journal articles, and videos, was 
  extracted and inserted into Readability Studio Software for analysis.
   RESULTS: The combined average grade level of materials (± standard 
  deviation) was: 10.47 ± 2.51 Flesh-Kincaid Grade Level (FKGL), 11-12 New 
  Dale-Chall (NDC), 10.09 ± 1.97 Simple Measure of Gobbledygook (SMOG), 12 Fry 
  Graph (FG). Thoracic, neurologic, vascular, plastic, and orthopedic were 
  least readable (grade level 10+ by all metrics).
   CONCLUSIONS: High readability of procedure materials for patients is not 
  unique to neurosurgery: all specialties exceeded the recommended 6th grade 
  level by three or more grades. Online patient education materials related to 
  surgical subspecialties must be written more comprehensibly.
   Keywords: Health literacy; Internet; Patient education; Readability; 
    Surgery
  DOI: https://doi.org/10.1016/j.clineuro.2020.106141
  URL: http://pubmed.ncbi.nlm.nih.gov/32861037

                                               Cureus. 2020 Aug 01. 12(8): e9511
 9. Quality of Online Information Regarding Cervical Cancer.
   Dawson JQ, Davies JM, Ingledew PA
  Introduction The internet is an important source of health information, and 
  yet the quality of the resources that patients' access can vary widely. 
  Previous research has evaluated the quality of information for several types 
  of cancer; however, this has not yet been done for cervical cancer beyond 
  treatment information. The goal of this project was to systematically 
  evaluate the quality of resources for cervical cancer information available 
  against a range of metrics, including content breadth and accuracy, 
  readability, and accountability.  Methods An internet search was performed 
  using the term "cervical cancer" using Google and two meta-search engines, 
  Dogpile and Yippy. The top-100 websites returned across all three engines 
  were evaluated using a validated structured rating tool.  Results Only 32% 
  of websites disclosed their author and only 38% used citations, while 64% of 
  websites had been updated in the last two years. Readability was at 
  university-level or higher for 19% of websites, and high-school level for 
  78%. Coverage was highest for etiology and risk factors (93% of 
  websites) and prevention strategies such as pap smears and vaccines (92%); 
  coverage was lowest for prognosis (49%), staging (52%), side effects 
  (47%), and follow-up (25%). When a topic was covered the information was 
  predominantly accurate, and few websites had inaccurate information. At 
  least one social-media platform was linked to by 79% of websites.  
  Conclusions This project highlights the strengths and limitations in the 
  quality of the top-100 informational cervical cancer websites. These 
  findings can inform the dialogue between health care providers and patients 
  around selecting and evaluating information resources. These findings can 
  also inform specific improvements to make online resources for cervical 
  cancer more accessible, comprehensive, and relevant to patients.
   Keywords: cervical cancer; information quality; internet; online health 
    information; patient education
  DOI: https://doi.org/10.7759/cureus.9511
  URL: http://pubmed.ncbi.nlm.nih.gov/32879831

                                          J Am Heart Assoc. 2020 Aug 31. e017372
10. Readability of Online Patient Educational Materials for Coronary 
     Artery Calcium Scans and Implications for Health Disparities.
   Rodriguez F, Ngo S, Baird G, Balla S, Miles R, Garg M
  Background Coronary artery calcium (CAC) scans can help reclassify risk and 
  guide patient-clinician shared treatment decisions for cardiovascular 
  disease prevention. Patients increasingly access online patient educational 
  materials (OPEMs) to guide medical decision-making. The American Medical 
  Association (AMA) recommends that OPEMs should be written below a 6th-grade 
  reading level. This study estimated the readability of commonly accessed 
  OPEMs on CAC scans. Methods and Results The terms "coronary artery calcium 
  scan," "heart scan," and "CAC score" were queried using an online search 
  engine to identify the top 50 commonly accessed websites based on order of 
  search results on December 17, 2019. Grade-level readability was calculated 
  using generalized estimating equations, with observations nested within 
  readability metrics from each website. Results were compared with 
  AMA-recommended readability parameters. Overall grade-level readability 
  among all search terms was 10.9 (95% CI, 9.3-12.5). Average grade-level 
  readability of OPEMs for the search terms "coronary artery calcium scan," 
  "heart scan," and "CAC score," was 10.7 (95% CI, 9.0-12.5), 10.5 (95% CI, 
  8.9-12.1), and 11.9 (95% CI, 10.3-13.5), respectively. Professional society 
  and news/media/blog websites had the highest average reading grade level of 
  12.6, while health system websites had the lowest average reading grade 
  level of 10.0. Less than half of the unique websites (45.3%) included 
  explanatory images or videos. Conclusions Current OPEMs on CAC scans are 
  written at a higher reading level than recommended for the general public. 
  This may lead to patient misunderstanding, which could exacerbate 
  disparities in cardiovascular health among groups with lower health literacy.
   Keywords: coronary artery calcium; health literacy; online patient 
    educational material
  DOI: https://doi.org/10.1161/JAHA.120.017372
  URL: http://pubmed.ncbi.nlm.nih.gov/32865121

                                                    Clin Rheumatol. 2020 Sep 02.
11. The usefulness and validity of English-language videos on YouTube as 
     an educational resource for spondyloarthritis.
   Elangovan S, Kwan YH, Fong W
  BACKGROUND: YouTube is a popular online platform where patients often visit 
  for information. However, the validity of the content on spondyloarthritis 
  (SpA) on YouTube is not known.
   OBJECTIVES: To evaluate the content, reliability, and quality of the most 
  viewed English-language YouTube videos on SpA.
   METHODS: Keywords "spondyloarthritis," "spondyloarthropathy," and 
  "ankylosing spondylitis" were searched on YouTube on October 7, 2019. The 
  top 270 videos were screened. Videos were excluded if they were irrelevant, 
  in non-English language, or if they had no audio. Total number of views, 
  duration on YouTube (days), video length, upload date, and number of likes, 
  dislikes, subscribers, and comments were recorded for videos. A modified 
  5-point DISCERN tool and the 5-point Global Quality Scale (GQS) score were 
  used to assess the reliability and quality of the videos.
   RESULTS: Two hundred videos were included in the final analysis (62% from 
  healthcare professionals, 37% from patients, and 2% from news channels). 
  Useful information, useful patient opinion, misleading patient opinion, and 
  misleading information comprised o60%, 26%, 11%, and 3% of videos 
  respectively. Majority of misleading videos were uploaded by patients (82%). 
  Misleading videos commonly included wrong clinical features and unproven 
  alternative treatments of SpA. Videos by healthcare professionals had more 
  useful information, higher reliability, and GQS scores.
   CONCLUSIONS: Majority of YouTube videos have useful information on SpA and 
  are important educational sources to patients. However, rheumatologists 
  should be aware that misleading patient opinions on alternative therapies 
  can contain inaccurate information and should hence actively correct these 
  misinformation during their clinic consults Key Points • The majority of 
  videos on Spondyloarthritis found on YouTube are deemed useful and are 
  uploaded by healthcare professionals. • The majority of misleading videos 
  were uploaded by patients and the main theme of misinformation was on 
  clinical features and treatment of spondyloarthritis.
   Keywords: Ankylosing spondylitis; Patient education; Quality; Social 
    media; Spondyloarthritis
  DOI: https://doi.org/10.1007/s10067-020-05377-w
  URL: http://pubmed.ncbi.nlm.nih.gov/32880051

                                                J Med Internet Res. 2020 Sep 03.
12. Using Xigua Video as a Source of Information on Breast Cancer: 
     Content Analysis.
   Pan P, Yu C, Luo H, Li T, Zhou X, Dai T, Tian H, Xiong Y
  BACKGROUND: Seeking health information on the Internet is a very popular 
  trend. Xigua Video, which is a short video platform in China, ranks among 
  the most accessed websites in the country and hosts an increasing number of 
  videos with medical information. However, the nature of the videos is 
  frequently unscientific, misleading, or even harmful.
   OBJECTIVE: Little is known about Xigua Video as a source of information on 
  breast cancer. Thus, the study aimed to investigate the contents, quality, 
  and reliability of breast cancer-related videos.
   METHODS: On February 4, 2020, a search of Xigua Video was made using the 
  keyword "breast cancer." Two doctors categorized the videos as useful or 
  misleading information. Furthermore, the reliability and quality of the 
  videos were assessed using the five-point DISCERN tool and five-point Global 
  Quality Score (GQS) tool.
   RESULTS: Out of the 170 videos selected for the study, 64 (37.6%) were 
  classified as useful, whereas 106 (62.4%) provided misleading information. A 
  total of 71 videos (41.8%) were generated by individuals versus 33 videos 
  (19.4%) contributed by professionals. The topics mainly covered etiology, 
  anatomy, symptoms, preventions, treatments, and prognosis. Treatments was 
  the top topic (70%). The reliability score and GQS score of the videos in 
  the useful information group were high (P < 0.001). No differences were 
  observed in terms of video length, duration in months, and comments between 
  the two groups. The number of total views was higher for the misleading 
  information group (819,478.5 vs. 647,940) but did not reach a level of 
  statistical significance (P = 0.112). The uploading sources of the videos 
  were mainly professionals, health information websites, medical 
  advertisements, and individuals. Statistical differences were found between 
  uploading source groups in terms of reliability score and GQS score (P 
  <.001). In terms of total views, video length, duration, and comments, no 
  statistical differences were indicated among the said groups. However, a 
  statistical difference was noted between the useful and misleading 
  information groups with respect to uploading sources (P <.001).
   CONCLUSIONS: Although many videos on Xigua Video are related to breast 
  cancer, a large number contain misleading information. Although such videos 
  are currently important sources of information for the general population, 
  the need arises for videos with full and accurate information collated by 
  professionals for upload to Xigua Video and other social media.
   CLINICALTRIAL:
  DOI: https://doi.org/10.2196/19668
  URL: http://pubmed.ncbi.nlm.nih.gov/32883651

                                                      Ir J Med Sci. 2020 Sep 05.
13. Internet search trends and online awareness of skin cancer and 
     melanoma in the Republic of Ireland and the UK.
   Murray G, Hellen R, O'Kane M
  DOI: https://doi.org/10.1007/s11845-020-02359-4
  URL: http://pubmed.ncbi.nlm.nih.gov/32888167

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