bims-librar Biomed News on Biomedical librarianship
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Issue of 2022‒12‒04 │
sixteen papers selected by │
Thomas Krichel (Open Library │
Society) │
http://e.biomed.news/librar │
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1. Developing Pathways to Health Sciences Librarianship with an
Introductory Course and Mentoring Program.
2. How Do Colorado Public Libraries Respond to Patron Queries about
Opioid Use Disorder? A Secret Shopper Study.
3. The Systematic Review Toolbox: keeping up to date with tools to
support evidence synthesis.
4. Towards semantic-driven boolean query formalization for biomedical
systematic literature reviews.
5. PhraseMap: Attention-Based Keyphrases Recommendation for Information
Seeking.
6. NLM-Chem-BC7: manually annotated full-text resources for chemical
entity annotation and indexing in biomedical articles.
7. Web-Based Health Information-Seeking Methods and Time Since Provider
Engagement: Cross-sectional Study.
8. The Risks Associated With Computed Tomography Scans: An Assessment of
the Readability and Reliability of Online Text Available for Patient
Information and Guidance.
9. The contribution of laparoscopic distal pancreatectomy videos on
YouTube to the learning curve in the COVID-19 pandemic.
10. Quality and utility of YouTube videos about mPCNL.
11. Evaluation of the Reliability and Quality of YouTube Video Content
about Perianal Fistulas.
12. The reliability and quality of YouTube videos as a source of
information on Buerger's Disease: a cross-sectional study.
13. Health information sharing on social media: quality assessment of
short videos about chronic kidney disease.
14. Experiences of caregivers and individuals living with traumatic brain
injury in accessing health information: a qualitative investigation.
15. Information Seeking Practices and Availability of Smart Devices Among
Healthcare Professionals in a Lower-Middle-Income Country: An Analysis
From Pakistan.
16. The Socioeconomic Indicators Linked to Parent Health-Related
Technology Use: Cross-sectional Survey.
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Ref Libr. 2022 ;63(3): 67-81
1. Developing Pathways to Health Sciences Librarianship with an
Introductory Course and Mentoring Program.
Gregory Laynor, Natalie Tagge
Because of gaps in the offerings of Library and Information Science programs
and librarian continuing education programs, library students and
early-career librarians may not be aware of opportunities in health sciences
librarianship. There is a need for introductory educational offerings on the
foundations of health sciences librarianship. There is also a need to
address barriers that may obstruct members of underrepresented groups from
becoming health sciences librarians. The article explores the possibility
that online education and mentoring can address gaps in introductory
educational offerings in health sciences librarianship. The article
describes the development of a pilot program for an online Introduction to
Health Sciences Librarianship course and mentoring program, reflects on
results from a survey of program participants, and identifies areas for
further research and program development. The article also discusses the
potential implications the program may have for addressing equity,
diversity, and inclusion in health sciences librarianship.
Keywords: health sciences librarianship; library and information science
education; mentoring; online learning; professional development
DOI: https://doi.org/10.1080/02763877.2022.2056559
URL: http://pubmed.ncbi.nlm.nih.gov/36437901
Subst Use Misuse. 2022 Nov 28. 1-6
2. How Do Colorado Public Libraries Respond to Patron Queries about
Opioid Use Disorder? A Secret Shopper Study.
Carly Kuehl, Cole Bortz, Holly Fussner, Courtney Olson, Nicole Russell,
Robert Andrew Sumner, D Tyler Coyle
Background: Colorado's age-adjusted fatal opioid overdose rate increased
over 400% from 2000 to 2020. Public libraries are increasingly valuable
community resources for accessing health-related information. We sought to
evaluate the availability and types of opioid use disorder (OUD)-related
resources offered through Colorado Public Library branches using secret
shoppers to collect data. Methods: This was a cross sectional study of 197
Colorado Public Libraries in 2021. Anonymous auditors posed as library
patrons asking a brief standardized script about availability of OUD-related
resources over the phone. We conducted descriptive analyses of the libraries
contacted, the response types of OUD resources provided, and information
about naloxone availability. Outcomes were compared between urban/rural and
libraries within/outside the Denver Public Library (DPL) system via means
comparison tests. Results: Approximately 50% of libraries were classified as
urban. Most (81%) of the libraries offered a valid OUD-resource, and over
half (51%) provided a referral to a treatment center offering at least one
medication for OUD. Over a third (36%) of librarians referenced the
statewide naloxone standing order allowing patients to obtain naloxone from
a pharmacy without prescription. One in ten libraries provided at least one
invalid referral resource. Libraries within the DPL system referenced
Colorado's naloxone standing order at higher rates than non-DPL libraries.
Conclusions: Public libraries may benefit from the development of a standard
for OUD-related resource training/education that can be distributed across
the state to create a space for community members to obtain resources
related to substance use.
Keywords: Opioid; naloxone; opioid use disorder
DOI: https://doi.org/10.1080/10826084.2022.2151825
URL: http://pubmed.ncbi.nlm.nih.gov/36444398
Syst Rev. 2022 Dec 01. 11(1): 258
3. The Systematic Review Toolbox: keeping up to date with tools to
support evidence synthesis.
Eugenie Evelynne Johnson, Hannah O'Keefe, Anthea Sutton, Christopher
Marshall
BACKGROUND: The Systematic Review (SR) Toolbox was developed in 2014 to
collate tools that can be used to support the systematic review process.
Since its inception, the breadth of evidence synthesis methodologies has
expanded greatly. This work describes the process of updating the SR Toolbox
in 2022 to reflect these changes in evidence synthesis methodology. We also
briefly analysed included tools and guidance to identify any potential gaps
in what is currently available to researchers.
METHODS: We manually extracted all guidance and software tools contained
within the SR Toolbox in February 2022. A single reviewer, with a second
checking a proportion, extracted and analysed information from records
contained within the SR Toolbox using Microsoft Excel. Using this
spreadsheet and Microsoft Access, the SR Toolbox was updated to reflect
expansion of evidence synthesis methodologies and brief analysis conducted.
RESULTS: The updated version of the SR Toolbox was launched on 13 May 2022,
with 235 software tools and 112 guidance documents included. Regarding
review families, most software tools (N = 223) and guidance documents (N =
78) were applicable to systematic reviews. However, there were fewer tools
and guidance documents applicable to reviews of reviews (N = 66 and N = 22,
respectively), while qualitative reviews were less served by guidance
documents (N = 19). In terms of review production stages, most guidance
documents surrounded quality assessment (N = 70), while software tools
related to searching and synthesis (N = 84 and N = 82, respectively). There
appears to be a paucity of tools and guidance relating to stakeholder
engagement (N = 2 and N = 3, respectively).
CONCLUSIONS: The SR Toolbox provides a platform for those undertaking
evidence syntheses to locate guidance and software tools to support
different aspects of the review process across multiple review types.
However, this work has also identified potential gaps in guidance and
software that could inform future research.
Keywords: Evidence synthesis; Guidance; Software; Support; Systematic
review; Tools
DOI: https://doi.org/10.1186/s13643-022-02122-z
URL: http://pubmed.ncbi.nlm.nih.gov/36457048
Int J Med Inform. 2022 Nov 24. pii: S1386-5056(22)00242-8.
4. Towards semantic-driven boolean query formalization for biomedical
systematic literature reviews.
Mohammadreza Pourreza, Faezeh Ensan
OBJECTIVE: Study identification refers to formalizing an effective search
over biomedical databases for retrieving all eligible evidence for a
systematic review. Manual construction of queries, where a user submit a
search query for which a biomedical search system such as PubMed would
identify the most relevant documents, has been recognized as a very costly
step in conducting systematic reviews. The objective of this paper is to
present an automatic query generation approach to reduce the time and labor
cost of manual biomedical study identification.
MATERIALS AND METHODS: The evaluation benchmark is the widely adopted CLEF
2018 Technology Assisted Reviews (TAR) collection, with 72 systematic
reviews on Diagnosis Test Accuracy. We use and fine-tune pre-trained
language models for generating high-level key-phrases and their dense
embeddings. We constructed and published a dataset consists of almost one
million PubMed articles' abstracts and their keywords for fine-tuning
pre-trained language models. We also use concepts that are represented in
the Unified Medical Language System, UMLS, for query expansion and embedding
generation. We exploit and test different clustering methods, namely
Agglomerative clustering, Affinity Propagation, and K-Means, over the
generated embeddings to form query clauses.
RESULTS: Our proposed methods outperform existing state-of-the-art automatic
query generation models across Precision (0.0821 compared with 0.005),
Recall (0.9676 compared with 0.878), and F-measures (0.2898 compared with
0.0356 in F3 measure). In addition, some of the proposed methods can even
outperform the performance of the manually crafted queries in some specific
measures.
CONCLUSION: The proposed model in this paper can be utilized to form an
effective initial search query that can be further refined and updated by
human reviewers for achieving the desired performance. For future work, we
would like to explore the application of the presented query formalization
methods in existing study identification methodologies and techniques,
especially those that iteratively train machine learning models based on the
domain experts' feedback on the relevancy of the retrieved studies.
Keywords: Biomedical contextual embedding; Boolean query formalization;
Systematic review; Technology-aided reviews; Unified medical language
system
DOI: https://doi.org/10.1016/j.ijmedinf.2022.104928
URL: http://pubmed.ncbi.nlm.nih.gov/36442443
IEEE Trans Vis Comput Graph. 2022 Nov 28. PP
5. PhraseMap: Attention-Based Keyphrases Recommendation for Information
Seeking.
Yamei Tu, Rui Qiu, Yu-Shuen Wang, Po-Yin Yen, Han-Wei Shen
Many Information Retrieval (IR) approaches have been proposed to extract
relevant information from a large corpus. Among these methods, phrase-based
retrieval methods have been proven to capture more concrete and concise
information than word-based and paragraph-based methods. However, due to the
complex relationship among phrases and a lack of proper visual guidance,
achieving user-driven interactive information-seeking and retrieval remains
challenging. In this study, we present a visual analytic approach for users
to seek information from an extensive collection of documents efficiently.
The main component of our approach is a PhraseMap, where nodes and edges
represent the extracted keyphrases and their relationships, respectively,
from a large corpus. To build the PhraseMap, we extract keyphrases from each
document and link the phrases according to word attention determined using
modern language models, i.e., BERT. As can be imagined, the graph is complex
due to the extensive volume of information and the massive amount of
relationships. Therefore, we develop a navigation algorithm to facilitate
information seeking. It includes (1) a question-answering (QA) model to
identify phrases related to users' queries and (2) updating relevant phrases
based on users' feedback. To better present the PhraseMap, we introduce a
resource-controlled self-organizing map (RC-SOM) to evenly and regularly
display phrases on grid cells while expecting phrases with similar semantics
to stay close in the visualization. To evaluate our approach, we conducted
case studies with three domain experts in diverse literature. The results
and feedback demonstrate its effectiveness, usability, and intelligence.
DOI: https://doi.org/10.1109/TVCG.2022.3225114
URL: http://pubmed.ncbi.nlm.nih.gov/36441879
Database (Oxford). 2022 Dec 01. pii: baac102. [Epub ahead of print]2022
6. NLM-Chem-BC7: manually annotated full-text resources for chemical
entity annotation and indexing in biomedical articles.
Rezarta Islamaj, Robert Leaman, David Cissel, Cathleen Coss, Joseph
Denicola, Carol Fisher, Rob Guzman, Preeti Gokal Kochar, Nicholas Miliaras,
Zoe Punske, Keiko Sekiya, Dorothy Trinh, Deborah Whitman, Susan Schmidt,
Zhiyong Lu
The automatic recognition of chemical names and their corresponding database
identifiers in biomedical text is an important first step for many
downstream text-mining applications. The task is even more challenging when
considering the identification of these entities in the article's full text
and, furthermore, the identification of candidate substances for that
article's metadata [Medical Subject Heading (MeSH) article indexing]. The
National Library of Medicine (NLM)-Chem track at BioCreative VII aimed to
foster the development of algorithms that can predict with high quality the
chemical entities in the biomedical literature and further identify the
chemical substances that are candidates for article indexing. As a result of
this challenge, the NLM-Chem track produced two comprehensive, manually
curated corpora annotated with chemical entities and indexed with chemical
substances: the chemical identification corpus and the chemical indexing
corpus. The NLM-Chem BioCreative VII (NLM-Chem-BC7) Chemical Identification
corpus consists of 204 full-text PubMed Central (PMC) articles, fully
annotated for chemical entities by 12 NLM indexers for both span (i.e. named
entity recognition) and normalization (i.e. entity linking) using MeSH. This
resource was used for the training and testing of the Chemical
Identification task to evaluate the accuracy of algorithms in predicting
chemicals mentioned in recently published full-text articles. The
NLM-Chem-BC7 Chemical Indexing corpus consists of 1333 recently published
PMC articles, equipped with chemical substance indexing by manual experts at
the NLM. This resource was used for the evaluation of the Chemical Indexing
task, which evaluated the accuracy of algorithms in predicting the chemicals
that should be indexed, i.e. appear in the listing of MeSH terms for the
document. This set was further enriched after the challenge in two ways: (i)
11 NLM indexers manually verified each of the candidate terms appearing in
the prediction results of the challenge participants, but not in the MeSH
indexing, and the chemical indexing terms appearing in the MeSH indexing
list, but not in the prediction results, and (ii) the challenge organizers
algorithmically merged the chemical entity annotations in the full text for
all predicted chemical entities and used a statistical approach to keep
those with the highest degree of confidence. As a result, the NLM-Chem-BC7
Chemical Indexing corpus is a gold-standard corpus for chemical indexing of
journal articles and a silver-standard corpus for chemical entity
identification in full-text journal articles. Together, these resources are
currently the most comprehensive resources for chemical entity recognition,
and we demonstrate improvements in the chemical entity recognition
algorithms. We detail the characteristics of these novel resources and make
them available for the community. Database URL: https://ftp.ncbi.nlm.nih.gov/pub/lu/NLM
-Chem-BC7-corpus/.
DOI: https://doi.org/10.1093/database/baac102
URL: http://pubmed.ncbi.nlm.nih.gov/36458799
JMIR Form Res. 2022 Nov 30. 6(11): e42126
7. Web-Based Health Information-Seeking Methods and Time Since Provider
Engagement: Cross-sectional Study.
Eden Shaveet, Catherine Urquhart, Marissa Gallegos, Olaf Dammann, Laura
Corlin
BACKGROUND: The use of web-based methods to seek health information is
increasing in popularity. As web-based health information (WHI)-seeking
affects health-related decision support and chronic symptom self-management,
WHI-seeking from online sources may impact health care decisions and
outcomes, including care-seeking decisions. Patients who are routinely
connected to physicians are more likely to receive better and more
consistent care. Little is known about whether WHI-seeking impacts the
frequency at which patients engage with health care providers.
OBJECTIVE: Our primary objective was to describe the associations between
the use of web-based methods to seek information about one's own health and
the time since last engaging with a health care provider about one's own
health. Additionally, we aimed to assess participants' trust in health care
organizations to contextualize our findings.
METHODS: We analyzed data from US adults participating in the nationally
representative Tufts Equity in Health, Wealth, and Civic Engagement Survey
(N=1034). Bivariate associations between demographic characteristics and
health information-seeking methods were assessed with Pearson chi-squared
tests. Bivariate associations of Medical Mistrust Index (MMI) scores with
each health information-seeking method and time since provider engagement
were assessed with F tests and adjusted Wald tests. We fit a multivariable
logistic regression model to assess the association between WHI-seeking
within the 12 months prior to survey (alone or in combination with
provider-based methods versus provider only) and engagement with a provider
more than 1 year prior to the time of survey, adjusting for age, race and
ethnicity, sex, education, insurance coverage, and MMI.
RESULTS: Age, race and ethnicity, educational attainment, health insurance
source, MMI, and time since provider engagement were each significantly
associated with the health information-seeking method in bivariate analyses.
Compared to using only provider-based health information seeking methods,
WHI-based methods alone or in combination with provider-based methods were
associated with a 51% lower likelihood (odds ratio 0.49, 95% CI 0.27-0.87)
of engaging with a provider within the previous year. Participants who used
WHI-seeking methods alone and those who had not engaged with a health care
provider within the previous year demonstrated a higher mean MMI score;
however, MMI was not a significant predictor of time since engagement with a
provider in the multivariable analysis.
CONCLUSIONS: Our findings from a nationally representative survey suggest
that for those who use WHI-seeking methods (alone or in combination with
provider-based information-seeking methods), there is a statistically
significant lower likelihood of engaging with a provider in a year compared
to those who only use provider-based methods. Future research should
consider the intent of a person's visit with a provider, trust in health
care systems, methods of provider engagement, and specific web-based
platforms for health information.
Keywords: consumer health information; information-seeking behavior;
internet; physician-patient relations; social media; trust
DOI: https://doi.org/10.2196/42126
URL: http://pubmed.ncbi.nlm.nih.gov/36449328
Cureus. 2022 Oct;14(10): e30758
8. The Risks Associated With Computed Tomography Scans: An Assessment of
the Readability and Reliability of Online Text Available for Patient
Information and Guidance.
Monica Hemaya, Maria Hemaya, Amir Habeeb
Introduction Computed tomography (CT) scanning has become a fundamental
aspect of many diagnostic pathways and therapeutic procedures. However, it
is not without risk. Many patients are unaware of the exposure to ionising
radiation that is involved with undergoing a CT scan, as well as the
associated increase in cancer risk with cumulative exposure. Controversy
over which clinician is responsible for advising a patient regarding CT risk
often means that patients are left uninformed and unaware. Those who choose
to seek further guidance online do so with the risk of encountering poor
quality, difficult-to-read medical text, which may leave them even more
confused or misinformed. Aim This study aimed to assess the readability,
quality, and accuracy of the information available to patients online
regarding CT scans and their associated risks. Method An internet search of
180 websites was collated using three search terms, each entered into three
search engines. The terms used were 'CT Risk', 'CT Harm', and 'Dangers of a
CT Scan'. Unique websites generated were assessed for readability using four
readability formulae: The Flesh-Kincaid Grade Level, the Flesch Reading Ease
Score, the Gunning Fog Index, and the Simple Measure of Gobbledygook (SMOG)
Index. The text on each website was also evaluated for quality and accuracy
using the Discern tool. Mean readability scores were calculated and compared
against the defined standard required for the information intended for the
general public. A two-tailed t-test was also carried out to assess
statistical significance. Results Of the 180 websites collated, 77 were
unique. 76.62% of websites (59/77) met the readability target for the
Flesch-Kincaid Grade Level, and 66.23% (51/77) met the target for the
Gunning Fog Index, which was for text to be readable at the Grade 8 level
(or by children aged 13-14). 59.74% (46/77) met the target for the SMOG
Index, which for healthcare information, was defined as Grade 6 Level, or
children aged 11-12. Only 11.69% of websites (9/77) met the target for the
Flesch Reading Ease score. 55.84% of websites satisfied the pre-defined
standard for three out of four readability criteria, however, only 11.69%
satisfied all four criteria, limited by the scores obtained by the Flesch
Reading Ease formula. The websites generated a mean Discern score of 3.58,
meaning the average quality of the information was deemed to be 'fair', with
no serious shortcomings. Conclusion More than 50% of websites satisfied
three readability criteria simultaneously. However, there is still scope for
improvement, both in terms of enhancing the readability of the remaining
websites, and also ensuring that all websites review the proportion of
polysyllabic words in the text, which is the emphasis of the Flesh Reading
Ease Score. In addition, physicians and radiologists have a responsibility
to inform patients of the risks associated with CT scans, and to direct them
to supplementary good-quality information and resources.
Keywords: computed tomography (ct ); ionising radiation; online medical
information; patient information; readability
DOI: https://doi.org/10.7759/cureus.30758
URL: http://pubmed.ncbi.nlm.nih.gov/36447695
Medicine (Baltimore). 2022 Nov 25. 101(47): e31537
9. The contribution of laparoscopic distal pancreatectomy videos on
YouTube to the learning curve in the COVID-19 pandemic.
Kamil Erözkan, Serdar Culcu, Selim Tamam, Ali Ekrem Unal
There is no standardization in videos uploaded to Youtube. Were the videos
capable of contributing to adequate technical quality and surgical training?
We are aiming to answer these questions in this paper. It is a
cross-sectional study. In January 2022, we searched the Youtube platform
using the keyword "distal pancreatectomy." The substantiality, transparency,
reliability, quality, popularity and educational values of the video content
were evaluated after exclusion criteria. These parameters were evaluated
using we the modified Journal of American Medical Association benchmark
criteria, Global Quality Score (GQS), Video Power Index, modified
laparoscopic pancreatectomy scoring system. The videos uploaded after the
pandemic had a statistically significant higher GQS score (P < .001). Video
Power Index, like GQS, had a statistically significant difference before and
after the pandemic. (P = .046). There was no significant difference in the
evaluation of the reliability and substantiality. Until the development of
Youtube videos is completed, peer-reviewed, more reliable and content-rich
online education platforms should be preferred in the first place. Care
should be taken to watch selected videos on Youtube videos.
DOI: https://doi.org/10.1097/MD.0000000000031537
URL: http://pubmed.ncbi.nlm.nih.gov/36451455
Urolithiasis. 2022 Dec 03. 51(1): 9
10. Quality and utility of YouTube videos about mPCNL.
Mehmet Yilmaz, Yusuf Sahin, Ibrahim Hacibey, Salih Zeki Sonmez, Ahmet Yaser
Muslumanoglu
This study assessed the reliability, efficacy, and quality of YouTube videos
on miniaturized PCNL procedures using a scoring system. Video searches were
conducted using the keywords miniaturized percutaneous nephrolithotomy
(mPCNL), ultra-mini-PCNL (UMP), and super-mini-PCNL (SMP) via
https://www.youtube.com . All videos > 2 min in English containing the
procedure of mPCNL were ordered and listed according to relevance and
popularity. Global quality scores (GQS) and reliability scales were used for
quality and content analysis of the videos. The confirmed video power index
(VPI) was used to assess video popularity, and the mPCNL score, developed by
three endourologists, was used to measure the informational and educational
value of the videos. While specialists (61.9%) were the main source for
uploading 63 videos included in the study, the largest target group was
patients (61.9%). Operational procedures (68.3%) were the main content, and
the highest upload region was Asian continent (66.7%). The majority of
videos were in English (60.3%), focused on standard mPCNL rather than
miniaturization subtypes (77.8%). The mean VPI, GQS, reliability, and mPCNL
scores were 4.61, 2.86, 2.61, 9.58, respectively. These parameters, which
were positively correlated, were found to be statistically significantly
higher for videos of 'academic' origin, 'Physicians' target audience and
'English audio' language format (p < 0.05). Because mPCNL videos, which are
popular and have high informational and educational value, are aimed at
medical professionals rather than patients, they are not functional in
treatment selection and explaining the procedure. By raising its standards,
video portals can make the treatment process practical as a functional
bridge between patients and health care professionals.
Keywords: Educational surgery video; Kidney stones; Miniaturized
percutaneous nephrolithotomy; YouTube
DOI: https://doi.org/10.1007/s00240-022-01374-7
URL: http://pubmed.ncbi.nlm.nih.gov/36460829
Biomed Res Int. 2022 ;2022 2955273
11. Evaluation of the Reliability and Quality of YouTube Video Content
about Perianal Fistulas.
Ersan Eroglu, Ediz Altinli
Objective: Perianal fistulas of the perianal soft tissues are an important
cause of morbidity and a significant portion of colorectal surgery. To our
knowledge, there is no study evaluating YouTube videos pertaining perianal
fistulas. In this study, we aimed to evaluate YouTube video contents on this
topic.
Methods: Whether the videos contained real images, animations or
presentations, video duration, number of views, comments and likes,
uploading date, and daily view were recorded. Reliability of the videos was
assessed using the Quality Criteria for Consumer Health Information
(DISCERN) scale and quality of the videos using the Global Quality Score
(GQS).
Results: A total of 100 YouTube videos regarding perianal fistulas were
included in the study. Sixty-four (64%) videos were uploaded by healthcare
professionals and 36 (36%) videos by nonprofessionals. The mean video length
was calculated as 6.70 ± 8.00 minutes for all videos. The mean DISCERN score
of all videos was found as 3.92 ± 0.81 and the mean GQS score as 3.97 ±
0.83. According to the DISCERN score, most videos included (94%) were of
good quality. There was an excellent agreement between the two surgeons in
terms of the DISCERN and GQS scores.
Conclusion: Most of the videos included in the study were uploaded by
health-care professionals. On the other hand, the majority of the videos
contained surgical management of perianal fistulas as it is the definitive
treatment. Healthcare related content should be audited and filtered by
YouTube with new and effective policies.
DOI: https://doi.org/10.1155/2022/2955273
URL: http://pubmed.ncbi.nlm.nih.gov/36440357
Ann Vasc Surg. 2022 Nov 25. pii: S0890-5096(22)00730-0. [Epub ahead of print]
12. The reliability and quality of YouTube videos as a source of
information on Buerger's Disease: a cross-sectional study.
Ersin Çelik, Ahmet Rıfkı Çora
OBJECTIVES: Patients are increasingly referring to the Internet after a
diagnosis of vascular disease. This study was performed to quantitatively
define the accuracy and reliability of information on YouTube regarding
Buerger Disease (BD).
METHODS: A systematic search of YouTube was conducted using BD and
thromboangiitis obliterans keywords. The default YouTube search setting of
"relevance" was used to replicate an average search attempt, and the first
50 results from each keyword search were reviewed and analyzed by two
independent reviewers. Descriptive characteristics, Journal of the American
Medical Association Score (JAMAS), modified DISCERN score, Global Quality
Scale (GQS) were used to record data.
RESULTS: A total of 50 videos were reviewed for the study. The mean JAMAS,
modified DISCERN and GQS values among the videos were 2.06/4.00 (standard
deviation [SD], 0.91), 2.36/5.00 (SD, 1.39) and 2.6/5.00 (SD, 1.16)
respectively. When the videos were analyzed according to the user types
uploading them, the modified DISCERN score was found to be significantly
higher (3.57/5.00 SD, 0.97) in the videos uploaded by vascular surgeons
(p=0.029). High-quality videos were determined as more recent (p=0.048). It
was observed that the modified DISCERN and JAMA scores increased as the
video quality increased.
CONCLUSION: While variable in source and content, the completeness and
reliability of the information presented on YouTube about BD is poor. We
believe that these videos should be uploaded more up-to-date and
comprehensively by medical professionals, especially medical doctors.
Keywords: Buerger’s Disease; Internet; YouTube; health information on the
Web; thromboangiitis obliterans
DOI: https://doi.org/10.1016/j.avsg.2022.10.009
URL: http://pubmed.ncbi.nlm.nih.gov/36442712
BMC Nephrol. 2022 Nov 28. 23(1): 378
13. Health information sharing on social media: quality assessment of
short videos about chronic kidney disease.
Lan Yao, Yubao Li, Qinglou Lian, Junjun Sun, Shuyin Zhao, Pei Wang
INTRODUCTION: Chronic kidney disease (CKD), which affects about 10% of
global population, has become a global public health crisis in recent
decades. It is well recognized that health information dissemination could
change health behaviors, thereby greatly improving the early diagnosis and
prevention of diseases. Due to fast dissemination, wide audience, intuitive
and vivid, popularization through short videos has rapidly developed into
the new main battlefield of health information. The objective of this study
was to describe the properties of the CKD-related health information on
short video apps.
METHODS: Searching on short video apps with high-frequency words in kidney
disease as keywords, the basic information of the uploaders was retrieved
and extracted short video. Five quality dimensions, awareness, popularity,
utility, validity and quality, of each video were assessed with numeric
rating scale (NRS) by five volunteers with CKD and three nephrologists.
RESULTS: From the platform of douyin, 65 uploaders and their 3973 short
videos of CKD-related health information were investigated in this study.
Most information of short videos had relatively high level in awareness,
popularity and utility assessment, but some information had relatively low
level in validity and quality assessment; 24 (36.9%) uploaders were from
governmental hospital (tertiary hospital); 19 uploaders (29.2%) uploaded
more than 100 short videos and 49 uploaders (75.4%) updated their videos
weekly, and 16 uploaders (24.6%) didn't update short videos more than one
month. There were 4 uploaders (6.2%) have more than 1 million follows, and
39 uploaders (60%) had follows less than 10,000. "Lifestyles", "Common
symptoms of kidney disease" and "Nephritis or kidney disease" were the three
main contents of these short videos. The comprehensive data of uploaders
with millions of follows in nephrology specialty were much lower than that
of orthopedics and other specialty.
CONCLUSION: The validity and quality of short video is still unsatisfactory,
and CKD-related health information also need to be led and improved,
although the awareness, popularity, and utility of health information about
CKD is acceptable. The public should be selective and cautious in seeking
CKD information on social media.
Keywords: Chronic kidney disease; Health information quality;
Infodemiology; Short video apps; Social media
DOI: https://doi.org/10.1186/s12882-022-03013-0
URL: http://pubmed.ncbi.nlm.nih.gov/36443741
Brain Inj. 2022 Nov 16. 1-10
14. Experiences of caregivers and individuals living with traumatic brain
injury in accessing health information: a qualitative investigation.
Tammie M Jones, Alaanah Bhanji, Sarah Osman, Xinsheng Cindy Cai, Steven
Garfinkel, Ali A Weinstein
BACKGROUND/PURPOSE: Rehabilitation and treatment of chronic symptoms of
traumatic brain injury (TBI) present life-long challenges. This qualitative
study aimed to understand the experience of individuals with TBI and
caregivers in finding and using health information and to understand their
interest in participating in research.
METHODS: Participants were recruited through hospital listservs, websites,
social media, and word of mouth from across the US. A qualitative
constructivism research method was used to analyze responses from
semi-structured interviews with 24 individuals, 11 with TBI and 13
caregivers.
RESULTS: Three major themes emerged from the analyses: 1) processes and
resources for finding TBI-related health information, 2) reliability of
information, and 3) participation in research. Study participants described
using the internet, consulting with healthcare professionals, reading
research articles, and seeking out information from other individuals with
TBI or caregivers to search for information. Participants also shared their
experiences related to evaluating the reliability of information and the
impact of individuals with TBI and caregivers participating on research
teams.
CONCLUSION: Participants identified various needs in finding relevant health
information and highlighted gaps in searching for and using health
information. Participants identified an overarching need for improved
dissemination of information that is both accessible and reliable.
Keywords: TBI; health information; knowledge translation
DOI: https://doi.org/10.1080/02699052.2022.2145366
URL: http://pubmed.ncbi.nlm.nih.gov/36453445
Cureus. 2022 Oct;14(10): e30771
15. Information Seeking Practices and Availability of Smart Devices Among
Healthcare Professionals in a Lower-Middle-Income Country: An Analysis
From Pakistan.
Sufyan Razak, Shilpa Bai, Faiza Zakaria, Mustafa Ali, Fnu Rashmi, Reem
Sulaiman, Ayesha Altaf Jangda, Ashish Tyagi, Fnu Nima, Syed Asad Hasan Rizvi
Introduction Evidence-based medicine (EBM) is a principle that integrates
clinical experience with relevant information available to provide adequate
healthcare. It requires access to current medical literature. This paper
analyzes the information requirements of a lower-middle-income country
(LMIC) and the resources available and preferred by medical professionals.
Methods A survey-based cross-sectional study was carried out among 160
participants, ranging in expertise from students to attending physicians in
Karachi, Pakistan. The survey comprised questions to assess the clinical
background, technology access, need for health-related information, and the
preference for resources to obtain that information in different scenarios.
They were also asked if they use PubMed and their recommended methods to
improve information access. Statistical Package for the Social Sciences
(SPSS; IBM, NY, USA) software was used for all analyses. Results A basic
mobile phone (with limited internet connectivity) was the most common device
used at home (n=159; 99.4%) and work (n=141; 88.1%). No smart devices were
available to 28 (17.5%) participants at work. Internet connectivity was
available for 155 (96.9%) participants at home but only for 118 (73.7%)
participants at work. About one-third (n=49; 30.6%) experienced questions
arising in practice two to four times a day, and half of the participants
(n=80; 50%) were very likely to look up a reference. The most common
resource for the majority of given clinical scenarios was a senior
colleague. At the same time, medical websites (Medscape, Up-to-Date, WebMD)
were the first choice for a non-specific general medical query. About 68.75%
(n=110) of participants claimed to use PubMed in daily practice. The most
common reason for not using PubMed was the ease of using other search
engines (like Google). Conclusions Improved access to the internet and
well-reputed journals can enhance the practice of EBM in Pakistan.
Limitations of technological access must be considered while designing
information resources in lower-middle-income countries.
Keywords: android; computer technology; evidence based medicine; internet;
iphone; lower middle income country; medical education; mobile phones;
pubmed database; smart devices
DOI: https://doi.org/10.7759/cureus.30771
URL: http://pubmed.ncbi.nlm.nih.gov/36447699
J Med Internet Res. 2022 Nov 30. 24(11): e37455
16. The Socioeconomic Indicators Linked to Parent Health-Related
Technology Use: Cross-sectional Survey.
Madison P McCall, Megan T Hineline, Margaret T Anton, April Highlander,
Deborah J Jones
BACKGROUND: Despite the prevalence of parent health information seeking on
the internet and its impact on parenting behavior, there is a paucity of
research on parents of young children (ages 3 to 8 years). Given the
importance of this developmental period, exploring how family socioeconomic
indicators linked to the digital divide and health inequities affect parent
proxy- and self-seeking is critical to further understanding variability in
health information seeking and associated outcomes.
OBJECTIVE: This study aimed to explore parental health-related technology
use (HTU), the process by which parents engage in support, advice, and
information-seeking behavior related to their (self-seeking) and their
children's (proxy seeking) health across a range of hardware devices (eg,
tablet, wearable, smartphone, laptop, and desktop computer) and sources (eg,
search engines, mobile applications, social media, and other digital media).
METHODS: A cross-sectional study including 313 parents and guardians of
children ages 3 to 8 years recruited through Amazon Mechanical Turk (MTurk)
was conducted. Parents were asked to complete a self-administered
questionnaire on a broad range of parenting and parent-related constructs,
including sociodemographic information, technology device ownership, and
engagement in and use, features, and perceptions of HTU. Descriptive and
bivariate analyses (chi-square tests) were performed to identify patterns
and investigate associations between family socioeconomic indicators and
parent HTU.
RESULTS: The overwhelming majority (301/313, 96%) of parents of young
children reported engaging in HTU, of which 99% (300/301) reported using
search engines (eg, Google), followed by social media (62%, 188/301), other
forms of digital media (eg, podcasts; 145/301, 48%), and mobile applications
(114/301, 38%). Parents who engaged in HTU reported seeking information
about their child's behavior and discipline practices (260/313, 83%), mental
or physical health (181/313, 58%), and academic performance (142/313, 45%).
Additionally, nearly half (134/313, 43%) of parents reported searching for
advice on managing their stress. Among parents who reported using each
source, an overwhelming majority (280/300, 93%) indicated that search
engines were a helpful online source for proxy- and self-seeking, followed
by social media (89%, 167/188), other digital media (120/145, 83%), and
mobile apps (87/114, 76%). Among parents who reported using any technology
source, approximately one-fifth reported that technology sources were most
comfortable (61/311, 20%), most understanding (69/311, 22%), and most
influential toward behavior change (73/312, 23%) compared to traditional
sources of health information-seeking, including mental health
professionals, other health care professionals, school professionals,
community leaders, friends, and family members. Indicators of family
socioeconomic status were differentially associated with frequency and
perceptions of and search content associated with parent HTU across
technology sources.
CONCLUSIONS: The findings of this study underscore critical considerations
in the design and dissemination of digital resources, programs, and
interventions targeting parent and child health, especially for families in
traditionally underserved communities.
Keywords: accessibility; child; digital health; health behavior; health
information; health-related technology use; information seeking; mobile
health; parenting; socioeconomic status
DOI: https://doi.org/10.2196/37455
URL: http://pubmed.ncbi.nlm.nih.gov/36449346
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