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November 2019, Week 5

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bims-librar       Biomed News on Biomedical librarianship
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Issue of 2019‒12‒01          │ 
nine papers selected by      │
Thomas Krichel (Open Library │
 Society)                    │
 http://e.biomed.news/librar │
                             │
                             │
                             └──────────────────────────────────────────────────
────────────────────────────────────────────────────────────────────────────────

1. Evidence-Based Leadership Practice and the Role of the Librarian.
2. Health science librarianship: An opportunity for nurses.
3. "Dr. Google" Will See You Now-Assessing the Quality of Information on 
    Oesophageal Cancer on the Internet.
4. Searching Data: A Review of Observational Data Retrieval Practices in 
    Selected Disciplines.
5. Internet searches by the Spanish population for unqualified information 
    on the treatment of osteoarthritis.
6. Assessment of the Readability, Adequacy, and Suitability of Online 
    Patient Education Resources for Benign Vascular Tumours Using the DISCERN 
    Instrument.
7. Internet health information use by surrogate decision makers of 
    patients admitted to the intensive care unit: a multicentre survey.
8. Optimizing genetics online resources for diverse readers.
9. Assessing the Readability of Online Information About Achilles Tendon 
    Ruptures.

────────────────────────────────────────────────────────────────────────────────

                                J Contin Educ Nurs. 2019 Dec 01. 50(12): 537-539
1. Evidence-Based Leadership Practice and the Role of the Librarian.
   Bleich MR, Brown R
 Evidence-based clinical practice is now the norm. When evidence exists to 
 enhance practice, organizational leaders work to instill the best practices 
 that benefit patient outcomes. Leaders are also responsible for 
 organizational outcomes and best practices in human and material resource 
 management, improving the culture, and ensuring and retaining a workforce 
 with sufficient talent, skills, and abilities. The authors address the role 
 of the librarian in securing evidence-based leadership practice. [J Contin 
 Educ Nurs. 2019;50(12):537-539.].
DOI: https://doi.org/10.3928/00220124-20191115-03
URL: http://www.ncbi.nlm.nih.gov/pubmed/31774923

                                                 Nursing. 2019 Dec;49(12): 53-56
2. Health science librarianship: An opportunity for nurses.
   Mages KC
 Health science librarianship may interest nurses inclined toward research, 
 technology, and education. This article discusses the role of health science 
 librarians as part of the clinical team.
DOI: https://doi.org/10.1097/01.NURSE.0000604716.12708.54
URL: http://www.ncbi.nlm.nih.gov/pubmed/31764875

                                               J Gastrointest Surg. 2019 Nov 25.
3. "Dr. Google" Will See You Now-Assessing the Quality of Information on 
    Oesophageal Cancer on the Internet.
   Burke E, Harkins P, Saeed M, Salama M, Ahmed I
 BACKGROUND: Increasingly, patients are consulting the internet for medical 
 information, where the quality is highly variable. We must ensure patients 
 are directed towards high-quality websites. This is particularly true of 
 oesophageal cancer which is often detected at an advanced stage and is 
 frequently fatal. We aim to assess the quality of information on oesophageal 
 cancer available for patients on the Internet.
  METHODS AND MATERIALS: We searched the top 3 search engines for "Esophageal 
 Cancer". We analysed the top 20 websites returned by Google and the top 10 
 websites returned by Yahoo and Bing. All free, English language websites 
 which did not require a password were included. We excluded paid 
 advertisement websites and websites for medical professionals. Duplicate 
 websites were removed. Each website was then evaluated using the JAMA 
 benchmarks, DISCERN tool, presence or absence of the Health On The Internet 
 (HON) seal and the Esophageal Cancer Specific Content Score (ECSCS).
  RESULTS: The average JAMA score was 2 with only three of the eighteen unique 
 websites scoring the maximum of 4 points (17%). The average DISCERN score was 
 51.5 (64%) with no website achieving the maximum of 80. The HON seal was 
 present in only 5 websites (28%). The average ECSCS was 9.2 with only two 
 websites achieving the maximum of 12 (11%).
  CONCLUSIONS: Whilst there are certainly websites providing high-quality 
 information for patients in relation to oesophageal cancer, our study has 
 identified obvious issues. We must ensure that only the highest-quality 
 information is available on the Internet for patients.
  Keywords: DISCERN tool; JAMA benchmark; Oesophageal cancer; Quality of 
   information
DOI: https://doi.org/10.1007/s11605-019-04416-5
URL: http://www.ncbi.nlm.nih.gov/pubmed/31768833

                                J Assoc Inf Sci Technol. 2019 May;70(5): 419-432
4. Searching Data: A Review of Observational Data Retrieval Practices in 
    Selected Disciplines.
   Gregory K, Groth P, Cousijn H, Scharnhorst A, Wyatt S
 A cross-disciplinary examination of the user behaviors involved in seeking 
 and evaluating data is surprisingly absent from the research data discussion. 
 This review explores the data retrieval literature to identify commonalities 
 in how users search for and evaluate observational research data in selected 
 disciplines. Two analytical frameworks, rooted in information retrieval and 
 science and technology studies, are used to identify key similarities in 
 practices as a first step toward developing a model describing data retrieval.
DOI: https://doi.org/10.1002/asi.24165
URL: http://www.ncbi.nlm.nih.gov/pubmed/31763358

          Rev Esp Cir Ortop Traumatol. 2019 Nov 22. pii: S1888-4415(19)30172-9. 
5. Internet searches by the Spanish population for unqualified information 
    on the treatment of osteoarthritis.
   Novoa-Parra CD, Sanjuan-Cerveró R, Franco-Ferrando N, Lizaur-Utrilla A
 OBJECTIVE: There is a current trend in the population to search the Internet 
 for unqualified medical information that may affect the recommendations given 
 in specialist consultation. The aim of this study was to analyse the tendency 
 of the Spanish population to search the Internet for unqualified information 
 on current treatments for osteoarthritis.
  MATERIAL AND METHOD: Google Trends was used analyse the information gathered 
 from the Internet, combining potential key search terms related to the 
 current treatment of osteoarthritis. For each term the relative search volume 
 was calculated, and its trend between 2009 and 2019. Spearman's correlation 
 was used to study the direction of the trend.
  RESULTS: All the infiltration methods had increasing trends and no 
 statistically significant differences were found between them (P=.769). The 
 term that showed the best correlation over time was «prp» with Spearman's 
 correlation =.90, and the term with the highest relative search volume was 
 «growth factors». Prosthetic treatment generated more interest than 
 conservative treatments, where there was more interest in knee replacement 
 than hip replacement (P<.001).
  CONCLUSION: In Spain, the search for unqualified information on the treatment 
 of osteoarthritis has increased over the past 10 years. There is more 
 interest in prosthetic treatment than the more conservative treatments. There 
 is more interest in knee replacement than hip replacement. There are no 
 differences with regard to the different methods of joint injections.
  Keywords: Artrosis; Big data; Factores de crecimiento; Growth factors; 
   Osteoarthritis; Plasma rich in platelets; Plasma rico en plaquetas; 
   Tendencias; Trends
DOI: https://doi.org/10.1016/j.recot.2019.10.003
URL: http://www.ncbi.nlm.nih.gov/pubmed/31767447

                                      Plast Surg (Oakv). 2019 Nov;27(4): 325-333
6. Assessment of the Readability, Adequacy, and Suitability of Online 
    Patient Education Resources for Benign Vascular Tumours Using the DISCERN 
    Instrument.
   Huynh MNQ, Hicks KE, Malic C
 Objective: This study aims to assess the quality and readability of 
 Internet-based patient resources for vascular tumours in order to understand 
 which areas require improvement.
  Methods: A World Wide Web search was performed, in addition to a literature 
 review using PubMed, Ovid MEDLINE, and EMBASE. Any material that contained 
 information on vascular tumours pertaining to patient education was included. 
 We evaluated resources with DISCERN and Flesch Reading Ease scores when 
 applicable. The language of publication was restricted to English and French. 
 This review was registered with PROSPERO (CRD42018087885).
  Results: A total of 117 online resources were screened, with 73 resources 
 included in the final analysis. The overall DISCERN rating for the patient 
 resources was 1.8 (0.8). The majority of online resources failed to depict 
 the entire spectrum of benign vascular tumours. The mean Flesch score was 36 
 (19), which translates to a college-level readability.
  Conclusion: The majority of resources were not adequate or comprehensive and 
 were written at a much higher level than the average reader would be expected 
 to comprehend.
  Keywords: comprehension; haemangioma; health literacy; patient education as 
   topic; pediatric; vascular anomalies; vascular tumour
DOI: https://doi.org/10.1177/2292550319880911
URL: http://www.ncbi.nlm.nih.gov/pubmed/31763333

                                        Crit Care Resusc. 2019 Dec;21(4): 305-10
7. Internet health information use by surrogate decision makers of 
    patients admitted to the intensive care unit: a multicentre survey.
   Das A, Anstey M, Bass F, Blythe D, Buhr H, Campbell L, Davda A, Delaney A, 
   Gattas D, Green C, Ferrier J, Hammond N, Palermo A, Pellicano S, Phillips 
   M, Regli A, Roberts B, Ross-King M, Saroode V, Simpson S, Spiller S, 
   Sullivan K, Tiruvoipati R, Haren FV, Waterson S, Yaw LK, Litton E
 OBJECTIVES: To investigate the use, understanding, trust and influence of the 
 internet and other sources of health information used by the next of kin 
 (NOK) of patients admitted to the intensive care unit (ICU).
  DESIGN: Multicentre structured survey.
  SETTING: The ICUs of 13 public and private Australian hospitals.
  PARTICIPANTS: NOK who self-identified as the primary surrogate decision maker 
 for a patient admitted to the ICU.
  MAIN OUTCOME MEASURES: The frequency, understanding, trust and influence of 
 online sources of health information, and the quality of health websites 
 visited using the Health on the Net Foundation Code of Conduct (HONcode) for 
 medical and health websites.
  RESULTS: There were 473 survey responses. The median ICU admission days and 
 number of ICU visits by the NOK at the time of completing the survey was 3 
 (IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported 
 sources of health information used very frequently were the ICU nurse 
 (55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the 
 internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet, 
 NOK using the internet were less likely to report complete understanding 
 (odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI, 
 0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the 
 ICU doctor. Overall, the quality of the 40 different reported websites 
 accessed was moderately high.
  CONCLUSIONS: A substantial proportion of ICU NOK report using the internet as 
 a source of health information. Internet use is associated with lower 
 reported understanding, trust and influence of the ICU doctor.
URL: http://www.ncbi.nlm.nih.gov/pubmed/31778639

                                                         Genet Med. 2019 Nov 26.
8. Optimizing genetics online resources for diverse readers.
   Chang J, Penon-Portmann M, Shieh JT
 PURPOSE: Clear and accurate genetic information should be available to 
 health-care consumers at an individualized level of comprehension. The 
 objective of this study is to evaluate the complexity of common online 
 resources and to simplify text content using automated text processing tools.
  METHODS: We extracted all text from Genetics Home Reference and MedlinePlus 
 in bulk and analyzed content using natural language processing. We applied 
 custom tools to improve the readability and compared readability before and 
 after text optimization.
  RESULTS: Commonly used educational materials were more complex than the 
 recommended reading level for the general public. Genetic health information 
 entries from Genetics Home Reference (n = 1279) were written at a median 13.0 
 grade level. MedlinePlus entries, which are not exclusively genetic 
 (n = 1030), had a median grade level of 7.7. When we optimized text for the 
 59 actionable conditions by prioritizing medical details using a standard 
 structure, the average reading grade level improved.
  CONCLUSION: Factors that increase complexity are long sentences and difficult 
 words. Future strategies to reduce complexity include prioritizing relevant 
 details and using more illustrations. Simplifying and providing standardized 
 online health resources would benefit diverse consumers and promote 
 inclusivity.
  Keywords: consumer health informatics; educational resources; genomics; 
   infographics; natural language processing
DOI: https://doi.org/10.1038/s41436-019-0695-7
URL: http://www.ncbi.nlm.nih.gov/pubmed/31767985

                                  Foot Ankle Spec. 2019 Nov 26. 1938640019888058
9. Assessing the Readability of Online Information About Achilles Tendon 
    Ruptures.
   Perez OD, Swindell HW, Herndon CL, Noback PC, Trofa DP, Vosseller JT
 The American Medical Association (AMA) and National Institutes of Health 
 (NIH) currently suggest that health care materials be written at a 
 sixth-grade reading level. Our study investigates the readability of online 
 information on Achilles rupture and reconstruction. Achilles tendon rupture, 
 Achilles tendon repair, and Achilles tendon reconstruction were queried using 
 advanced search functions of Google, Bing, and Yahoo!. Individual websites 
 and text from the first 3 pages of results for each search engine were 
 recorded and categorized as physician based, academic, commercial, government 
 and nongovernmental organization, or unspecified. Individual readability 
 scores were calculated via 6 different indices: Flesch-Kincaid grade level, 
 Flesch Reading Ease, Gunning Fog, SMOG, Coleman-Liau index, and Automated 
 Readability Index along with a readability classification score and average 
 grade level. A total of 56 websites were assessed. Academic webpages composed 
 the majority (51.8%), followed by physician-based sources (32.1%). The 
 average overall grade level was 10.7 ± 2.54. Academic websites were written 
 at the highest-grade level (11.5 ± 2.77), significantly higher than 
 physician-based websites (P = .040), and only 2 were written at, or below, a 
 sixth-grade reading level. Currently, online information on Achilles tendon 
 rupture and reconstruction is written at an inappropriately high reading 
 level compared with recommendations from the AMA and NIH. Level of Evidence: 
 Level IV.
  Keywords: Achilles tendon reconstruction; Achilles tendon rupture; health 
   care literacy; readability
DOI: https://doi.org/10.1177/1938640019888058
URL: http://www.ncbi.nlm.nih.gov/pubmed/31771353

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