bims-librar Biomed News on Biomedical librarianship
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Issue of 2019‒12‒01 │
nine papers selected by │
Thomas Krichel (Open Library │
Society) │
http://e.biomed.news/librar │
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1. Evidence-Based Leadership Practice and the Role of the Librarian.
2. Health science librarianship: An opportunity for nurses.
3. "Dr. Google" Will See You Now-Assessing the Quality of Information on
Oesophageal Cancer on the Internet.
4. Searching Data: A Review of Observational Data Retrieval Practices in
Selected Disciplines.
5. Internet searches by the Spanish population for unqualified information
on the treatment of osteoarthritis.
6. Assessment of the Readability, Adequacy, and Suitability of Online
Patient Education Resources for Benign Vascular Tumours Using the DISCERN
Instrument.
7. Internet health information use by surrogate decision makers of
patients admitted to the intensive care unit: a multicentre survey.
8. Optimizing genetics online resources for diverse readers.
9. Assessing the Readability of Online Information About Achilles Tendon
Ruptures.
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J Contin Educ Nurs. 2019 Dec 01. 50(12): 537-539
1. Evidence-Based Leadership Practice and the Role of the Librarian.
Bleich MR, Brown R
Evidence-based clinical practice is now the norm. When evidence exists to
enhance practice, organizational leaders work to instill the best practices
that benefit patient outcomes. Leaders are also responsible for
organizational outcomes and best practices in human and material resource
management, improving the culture, and ensuring and retaining a workforce
with sufficient talent, skills, and abilities. The authors address the role
of the librarian in securing evidence-based leadership practice. [J Contin
Educ Nurs. 2019;50(12):537-539.].
DOI: https://doi.org/10.3928/00220124-20191115-03
URL: http://www.ncbi.nlm.nih.gov/pubmed/31774923
Nursing. 2019 Dec;49(12): 53-56
2. Health science librarianship: An opportunity for nurses.
Mages KC
Health science librarianship may interest nurses inclined toward research,
technology, and education. This article discusses the role of health science
librarians as part of the clinical team.
DOI: https://doi.org/10.1097/01.NURSE.0000604716.12708.54
URL: http://www.ncbi.nlm.nih.gov/pubmed/31764875
J Gastrointest Surg. 2019 Nov 25.
3. "Dr. Google" Will See You Now-Assessing the Quality of Information on
Oesophageal Cancer on the Internet.
Burke E, Harkins P, Saeed M, Salama M, Ahmed I
BACKGROUND: Increasingly, patients are consulting the internet for medical
information, where the quality is highly variable. We must ensure patients
are directed towards high-quality websites. This is particularly true of
oesophageal cancer which is often detected at an advanced stage and is
frequently fatal. We aim to assess the quality of information on oesophageal
cancer available for patients on the Internet.
METHODS AND MATERIALS: We searched the top 3 search engines for "Esophageal
Cancer". We analysed the top 20 websites returned by Google and the top 10
websites returned by Yahoo and Bing. All free, English language websites
which did not require a password were included. We excluded paid
advertisement websites and websites for medical professionals. Duplicate
websites were removed. Each website was then evaluated using the JAMA
benchmarks, DISCERN tool, presence or absence of the Health On The Internet
(HON) seal and the Esophageal Cancer Specific Content Score (ECSCS).
RESULTS: The average JAMA score was 2 with only three of the eighteen unique
websites scoring the maximum of 4 points (17%). The average DISCERN score was
51.5 (64%) with no website achieving the maximum of 80. The HON seal was
present in only 5 websites (28%). The average ECSCS was 9.2 with only two
websites achieving the maximum of 12 (11%).
CONCLUSIONS: Whilst there are certainly websites providing high-quality
information for patients in relation to oesophageal cancer, our study has
identified obvious issues. We must ensure that only the highest-quality
information is available on the Internet for patients.
Keywords: DISCERN tool; JAMA benchmark; Oesophageal cancer; Quality of
information
DOI: https://doi.org/10.1007/s11605-019-04416-5
URL: http://www.ncbi.nlm.nih.gov/pubmed/31768833
J Assoc Inf Sci Technol. 2019 May;70(5): 419-432
4. Searching Data: A Review of Observational Data Retrieval Practices in
Selected Disciplines.
Gregory K, Groth P, Cousijn H, Scharnhorst A, Wyatt S
A cross-disciplinary examination of the user behaviors involved in seeking
and evaluating data is surprisingly absent from the research data discussion.
This review explores the data retrieval literature to identify commonalities
in how users search for and evaluate observational research data in selected
disciplines. Two analytical frameworks, rooted in information retrieval and
science and technology studies, are used to identify key similarities in
practices as a first step toward developing a model describing data retrieval.
DOI: https://doi.org/10.1002/asi.24165
URL: http://www.ncbi.nlm.nih.gov/pubmed/31763358
Rev Esp Cir Ortop Traumatol. 2019 Nov 22. pii: S1888-4415(19)30172-9.
5. Internet searches by the Spanish population for unqualified information
on the treatment of osteoarthritis.
Novoa-Parra CD, Sanjuan-Cerveró R, Franco-Ferrando N, Lizaur-Utrilla A
OBJECTIVE: There is a current trend in the population to search the Internet
for unqualified medical information that may affect the recommendations given
in specialist consultation. The aim of this study was to analyse the tendency
of the Spanish population to search the Internet for unqualified information
on current treatments for osteoarthritis.
MATERIAL AND METHOD: Google Trends was used analyse the information gathered
from the Internet, combining potential key search terms related to the
current treatment of osteoarthritis. For each term the relative search volume
was calculated, and its trend between 2009 and 2019. Spearman's correlation
was used to study the direction of the trend.
RESULTS: All the infiltration methods had increasing trends and no
statistically significant differences were found between them (P=.769). The
term that showed the best correlation over time was «prp» with Spearman's
correlation =.90, and the term with the highest relative search volume was
«growth factors». Prosthetic treatment generated more interest than
conservative treatments, where there was more interest in knee replacement
than hip replacement (P<.001).
CONCLUSION: In Spain, the search for unqualified information on the treatment
of osteoarthritis has increased over the past 10 years. There is more
interest in prosthetic treatment than the more conservative treatments. There
is more interest in knee replacement than hip replacement. There are no
differences with regard to the different methods of joint injections.
Keywords: Artrosis; Big data; Factores de crecimiento; Growth factors;
Osteoarthritis; Plasma rich in platelets; Plasma rico en plaquetas;
Tendencias; Trends
DOI: https://doi.org/10.1016/j.recot.2019.10.003
URL: http://www.ncbi.nlm.nih.gov/pubmed/31767447
Plast Surg (Oakv). 2019 Nov;27(4): 325-333
6. Assessment of the Readability, Adequacy, and Suitability of Online
Patient Education Resources for Benign Vascular Tumours Using the DISCERN
Instrument.
Huynh MNQ, Hicks KE, Malic C
Objective: This study aims to assess the quality and readability of
Internet-based patient resources for vascular tumours in order to understand
which areas require improvement.
Methods: A World Wide Web search was performed, in addition to a literature
review using PubMed, Ovid MEDLINE, and EMBASE. Any material that contained
information on vascular tumours pertaining to patient education was included.
We evaluated resources with DISCERN and Flesch Reading Ease scores when
applicable. The language of publication was restricted to English and French.
This review was registered with PROSPERO (CRD42018087885).
Results: A total of 117 online resources were screened, with 73 resources
included in the final analysis. The overall DISCERN rating for the patient
resources was 1.8 (0.8). The majority of online resources failed to depict
the entire spectrum of benign vascular tumours. The mean Flesch score was 36
(19), which translates to a college-level readability.
Conclusion: The majority of resources were not adequate or comprehensive and
were written at a much higher level than the average reader would be expected
to comprehend.
Keywords: comprehension; haemangioma; health literacy; patient education as
topic; pediatric; vascular anomalies; vascular tumour
DOI: https://doi.org/10.1177/2292550319880911
URL: http://www.ncbi.nlm.nih.gov/pubmed/31763333
Crit Care Resusc. 2019 Dec;21(4): 305-10
7. Internet health information use by surrogate decision makers of
patients admitted to the intensive care unit: a multicentre survey.
Das A, Anstey M, Bass F, Blythe D, Buhr H, Campbell L, Davda A, Delaney A,
Gattas D, Green C, Ferrier J, Hammond N, Palermo A, Pellicano S, Phillips
M, Regli A, Roberts B, Ross-King M, Saroode V, Simpson S, Spiller S,
Sullivan K, Tiruvoipati R, Haren FV, Waterson S, Yaw LK, Litton E
OBJECTIVES: To investigate the use, understanding, trust and influence of the
internet and other sources of health information used by the next of kin
(NOK) of patients admitted to the intensive care unit (ICU).
DESIGN: Multicentre structured survey.
SETTING: The ICUs of 13 public and private Australian hospitals.
PARTICIPANTS: NOK who self-identified as the primary surrogate decision maker
for a patient admitted to the ICU.
MAIN OUTCOME MEASURES: The frequency, understanding, trust and influence of
online sources of health information, and the quality of health websites
visited using the Health on the Net Foundation Code of Conduct (HONcode) for
medical and health websites.
RESULTS: There were 473 survey responses. The median ICU admission days and
number of ICU visits by the NOK at the time of completing the survey was 3
(IQR, 2-6 days) and 4 (IQR, 2-7), respectively. The most commonly reported
sources of health information used very frequently were the ICU nurse
(55.6%), ICU doctor (38.7%), family (23.3%), hospital doctor (21.4%), and the
internet (11.3%). Compared with the 243 NOK (51.6%) not using the internet,
NOK using the internet were less likely to report complete understanding
(odds ratio [OR], 0.57; 95% CI, 0.38-0.88), trust (OR, 0.34; 95% CI,
0.19-0.59), or influence (OR, 0.58; 95% CI, 0.38-0.88) associated with the
ICU doctor. Overall, the quality of the 40 different reported websites
accessed was moderately high.
CONCLUSIONS: A substantial proportion of ICU NOK report using the internet as
a source of health information. Internet use is associated with lower
reported understanding, trust and influence of the ICU doctor.
URL: http://www.ncbi.nlm.nih.gov/pubmed/31778639
Genet Med. 2019 Nov 26.
8. Optimizing genetics online resources for diverse readers.
Chang J, Penon-Portmann M, Shieh JT
PURPOSE: Clear and accurate genetic information should be available to
health-care consumers at an individualized level of comprehension. The
objective of this study is to evaluate the complexity of common online
resources and to simplify text content using automated text processing tools.
METHODS: We extracted all text from Genetics Home Reference and MedlinePlus
in bulk and analyzed content using natural language processing. We applied
custom tools to improve the readability and compared readability before and
after text optimization.
RESULTS: Commonly used educational materials were more complex than the
recommended reading level for the general public. Genetic health information
entries from Genetics Home Reference (n = 1279) were written at a median 13.0
grade level. MedlinePlus entries, which are not exclusively genetic
(n = 1030), had a median grade level of 7.7. When we optimized text for the
59 actionable conditions by prioritizing medical details using a standard
structure, the average reading grade level improved.
CONCLUSION: Factors that increase complexity are long sentences and difficult
words. Future strategies to reduce complexity include prioritizing relevant
details and using more illustrations. Simplifying and providing standardized
online health resources would benefit diverse consumers and promote
inclusivity.
Keywords: consumer health informatics; educational resources; genomics;
infographics; natural language processing
DOI: https://doi.org/10.1038/s41436-019-0695-7
URL: http://www.ncbi.nlm.nih.gov/pubmed/31767985
Foot Ankle Spec. 2019 Nov 26. 1938640019888058
9. Assessing the Readability of Online Information About Achilles Tendon
Ruptures.
Perez OD, Swindell HW, Herndon CL, Noback PC, Trofa DP, Vosseller JT
The American Medical Association (AMA) and National Institutes of Health
(NIH) currently suggest that health care materials be written at a
sixth-grade reading level. Our study investigates the readability of online
information on Achilles rupture and reconstruction. Achilles tendon rupture,
Achilles tendon repair, and Achilles tendon reconstruction were queried using
advanced search functions of Google, Bing, and Yahoo!. Individual websites
and text from the first 3 pages of results for each search engine were
recorded and categorized as physician based, academic, commercial, government
and nongovernmental organization, or unspecified. Individual readability
scores were calculated via 6 different indices: Flesch-Kincaid grade level,
Flesch Reading Ease, Gunning Fog, SMOG, Coleman-Liau index, and Automated
Readability Index along with a readability classification score and average
grade level. A total of 56 websites were assessed. Academic webpages composed
the majority (51.8%), followed by physician-based sources (32.1%). The
average overall grade level was 10.7 ± 2.54. Academic websites were written
at the highest-grade level (11.5 ± 2.77), significantly higher than
physician-based websites (P = .040), and only 2 were written at, or below, a
sixth-grade reading level. Currently, online information on Achilles tendon
rupture and reconstruction is written at an inappropriately high reading
level compared with recommendations from the AMA and NIH. Level of Evidence:
Level IV.
Keywords: Achilles tendon reconstruction; Achilles tendon rupture; health
care literacy; readability
DOI: https://doi.org/10.1177/1938640019888058
URL: http://www.ncbi.nlm.nih.gov/pubmed/31771353
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