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MEDLIB-L  October 2018, Week 3

MEDLIB-L October 2018, Week 3

Subject:

FW: [HealthLit] Request for Cases and Examples of Health Literacy in Clinical Research!

From:

"Burda, Michelle Lynn" <[log in to unmask]>

Reply-To:

Burda, Michelle Lynn

Date:

Wed, 17 Oct 2018 13:50:02 +0000

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (56 lines)

Hi All-
Sharing in case you are not on the Health Literacy Discussion List. If your institution has something to submit will you share it with me too?
Thank you,

Michelle Burda
[log in to unmask]<mailto:[log in to unmask]>
Phone: 412.624.1589
Education and Health Literacy Coordinator
National Network of Libraries of Medicine, Middle Atlantic Region
http://nnlm.gov/mar/
"There is no better way to learn than to teach"
[Libraries-Transform-Logo-Final-TwoColor]

Health Sciences Library System
University of Pittsburgh
200 Scaife Hall 3550 Terrace Street Pittsburgh, PA 15261

From: Health Literacy Discussion List [mailto:[log in to unmask]] On Behalf Of Baedorf Kassis, Sylvia
Sent: Tuesday, October 16, 2018 3:25 PM
To: [log in to unmask]
Subject: [HealthLit] Request for Cases and Examples of Health Literacy in Clinical Research!

The Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard<https://na01.safelinks.protection.outlook.com/?url=http%3A%2F%2Fmrctcenter.org%2F&data=02%7C01%7Cmburda%40PITT.EDU%7C4f99297501ce4d53011c08d633a80e0f%7C9ef9f489e0a04eeb87cc3a526112fd0d%7C1%7C0%7C636753194224516017&sdata=XtY6Epvwc7WAfC%2F9FaIjOk2DXXWhzm4FGYkb%2BxVroVQ%3D&reserved=0> is coordinating an initiative on Health Literacy in Clinical Research. Additional details follow below.

We are seeking case studies and examples that demonstrate how health literacy principles and best practices have been applied in the clinical research environment. For example, you could describe the process of creating a health literate visit schedule/calendar for your study population or how you developed a process of following-up with participants that uses health literate letters and questionnaires. We are open to any and all examples! Our plan is to showcase these on a freely available website we are developing as examples of health literacy in action.

If you have a case you would like to share, please complete this online submission form<https://na01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fredcap.partners.org%2Fredcap%2Fsurveys%2F%3Fs%3DFEEPDPJLC7&data=02%7C01%7Cmburda%40PITT.EDU%7C4f99297501ce4d53011c08d633a80e0f%7C9ef9f489e0a04eeb87cc3a526112fd0d%7C1%7C0%7C636753194224516017&sdata=E%2BdpkHO1eMnY2rwrEV63bMLOcUIwP6o0D2oc%2FReybcU%3D&reserved=0>.

Please feel free to contact Sylvia Baedorf Kassis with any questions or to set up a time to discuss ([log in to unmask]<mailto:[log in to unmask]>)

**********************************************************************************
Project Summary
The Health Literacy in Clinical Research Project<https://na01.safelinks.protection.outlook.com/?url=http%3A%2F%2Fmrctcenter.org%2Fprojects%2Fhealth-literacy-clinical-research%2F&data=02%7C01%7Cmburda%40PITT.EDU%7C4f99297501ce4d53011c08d633a80e0f%7C9ef9f489e0a04eeb87cc3a526112fd0d%7C1%7C0%7C636753194224516017&sdata=6HVhAUHD6coXXoDIaNyvyAdBSllsrgNsok%2Fgcc%2BMyFc%3D&reserved=0> is an initiative that was launched by the Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard (MRCT Center) in April of 2018 to develop resources that support understandable communication of clinical research information. The goal of our workgroup is to provide stakeholders who author clinical research documents (such as sponsors, investigators and study teams, institutional review boards, and legal/compliance personnel) with the tools and techniques they need to contribute meaningfully to the creation of health literate clinical research communications for patients, participants, and their families.

Details of the Request for Health Literacy Cases and Health Literate Research Materials
In order to demonstrate the implementation of health literacy recommendations, we would like our website to include many cases and before-and-after examples that show how health literacy principles benefited a research study and/or improved a research document. Using true scenarios and actual documents from real studies (which, of course, can also be de-identified and altered appropriately to mask the study if desired) is a great way to show how health literacy can be successfully adopted within the research environment.


 Sylvia Baedorf Kassis, MPH, CYT
Program Manager
Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard
[log in to unmask]<mailto:[log in to unmask]> | 617.521.3383 (desk); 617.953.0928 (mobile); 617-521-3392 (fax)


The information in this e-mail is intended only for the person to whom it is
addressed. If you believe this e-mail was sent to you in error and the e-mail
contains patient information, please contact the Partners Compliance HelpLine at
http://www.partners.org/complianceline . If the e-mail was sent to you in error
but does not contain patient information, please contact the sender and properly
dispose of the e-mail.

________________________________

To unsubscribe from the HLDL list, click the following link:
http://listserv.ihahealthliteracy.org/scripts/wa.exe?SUBED1=HLDL&A=1<https://na01.safelinks.protection.outlook.com/?url=http%3A%2F%2Flistserv.ihahealthliteracy.org%2Fscripts%2Fwa.exe%3FSUBED1%3DHLDL%26A%3D1&data=02%7C01%7Cmburda%40PITT.EDU%7C4f99297501ce4d53011c08d633a80e0f%7C9ef9f489e0a04eeb87cc3a526112fd0d%7C1%7C0%7C636753194224672271&sdata=MDrdwMVBLGvaVgUmihcipkcWPDeaLgdaAjEx86ESK%2Bc%3D&reserved=0>

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November 2004, Week 5
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December 2003, Week 1
November 2003, Week 5
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October 2003, Week 5
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March 2001, Week 3
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December 2000, Week 5
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December 1999, Week 5
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December 1998, Week 5
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January 1998, Week 5
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January 1998, Week 3
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December 1997, Week 5
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December 1995, Week 5
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