bims-librar Biomed News on Biomedical librarianship
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Issue of 2020‒09‒06 │
thirteen papers selected by │
Thomas Krichel (Open Library │
Society) │
http://e.biomed.news/librar │
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1. Library Jargon Creates Barriers for Potential Users of Health Library
and Information Services.
2. Ensuring the rigor in systematic reviews: Part 2, preparation is key:
The question and the protocol.
3. Searching for online health information instead of seeing a physician:
a cross-sectional study among high school students in Belgrade, Serbia.
4. Social media as a tool for scientific updating at the time of COVID
pandemic: Results from a national survey in Italy.
5. Information on the COVID-19 Pandemic in Daily Newspapers' Front Pages:
Case Study of Spain and Italy.
6. Preference and Trust: An Investigation of Information Source of
COVID-19 Among People Over 50 Years.
7. Pelvic vein embolization: an assessment of the readability and quality
of online information for patients.
8. Health literacy among neurosurgery and other surgical subspecialties:
Readability of online patient materials found with Google.
9. Quality of Online Information Regarding Cervical Cancer.
10. Readability of Online Patient Educational Materials for Coronary
Artery Calcium Scans and Implications for Health Disparities.
11. The usefulness and validity of English-language videos on YouTube as
an educational resource for spondyloarthritis.
12. Using Xigua Video as a Source of Information on Breast Cancer:
Content Analysis.
13. Internet search trends and online awareness of skin cancer and
melanoma in the Republic of Ireland and the UK.
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Health Info Libr J. 2020 Aug 31.
1. Library Jargon Creates Barriers for Potential Users of Health Library
and Information Services.
Kiely H
This paper is based on Helen Kiely's Masters dissertation on MA in Library
and Information Service Management, successfully completed at the University
of Sheffield in 2018. The aim of the study was to explore the extent to
which users of a health care library service understood common terminology
used by clinical librarians/information professionals. A survey was
developed based on the terminology used for common services and was
distributed to staff and students at an acute NHS Foundation Trust. One
hundred and eight people participated over a four week period and were asked
to provide definitions to the terms. Analysis of the responses for accuracy
and common themes indicates that jargon can be a barrier to user access and
recommendations are made with respect to the need for outreach to users and
the language used in this practice for creating better accessibility. F.J.
Keywords: library and information professionals; library outreach; library
services; surveys
DOI: https://doi.org/10.1111/hir.12328
URL: http://pubmed.ncbi.nlm.nih.gov/32866346
Heart Lung. 2020 Aug 26. pii: S0147-9563(20)30299-5. [Epub ahead of print]
2. Ensuring the rigor in systematic reviews: Part 2, preparation is key:
The question and the protocol.
Brackett A, Batten J
Keywords: Librarian; Meta-analysis; Protocol; Systematic review
DOI: https://doi.org/10.1016/j.hrtlng.2020.07.001
URL: http://pubmed.ncbi.nlm.nih.gov/32861558
Int J Public Health. 2020 Sep 02.
3. Searching for online health information instead of seeing a physician:
a cross-sectional study among high school students in Belgrade, Serbia.
Gazibara T, Cakic J, Cakic M, Grgurevic A, Pekmezovic T
OBJECTIVES: Fear of being judged and stigmatized has been reported as
barriers for adolescents to timely use healthcare services. The objective of
this study was to examine the prevalence and factors associated with online
health information seeking instead of seeing a physician among high school
students.
METHODS: A cross-sectional questionnaire-based study was carried out in four
out of 21 public high schools in Belgrade, from December 2016 to January
2017 (n = 702, 41.9% males, 15-19 years old). The association of
socio-demographic characteristics, digital literacy, interest in health
topics and the use of online platforms with health information seeking was
analysed using multinomial regression models.
RESULTS: More than half of high school students (56.6%) search for online
health information instead of seeking a physician. Being male, having
lower-grade point average, attending humanities-languages program, older age
at first Internet use, better e-health literacy, use of smartphones,
interest in sexually transmitted diseases and mental health, use of websites
run by physicians and Youtube was associated with online health information
seeking instead of in-person visit to a physician.
CONCLUSIONS: Setting up safe and supportive online platform could help
adolescents improve health education. Physicians who see adolescent patients
should encourage discussions about sensitive health topics.
Keywords: Adolescents; Health information; Information seeking behaviour;
Internet; e-Health
DOI: https://doi.org/10.1007/s00038-020-01471-7
URL: http://pubmed.ncbi.nlm.nih.gov/32876767
PLoS One. 2020 ;15(9): e0238414
4. Social media as a tool for scientific updating at the time of COVID
pandemic: Results from a national survey in Italy.
Murri R, Segala FV, Del Vecchio P, Cingolani A, Taddei E, Micheli G,
Fantoni M,
In the face of the rapid evolution of the COVID-19 pandemic, healthcare
professionals on the frontline are in urgent need of frequent updates in the
accomplishment of their practice. Hence, clinicians started to search for
prompt, valid information on sources that are parallel to academic journals.
Aim of this work is to investigate the extent of this phenomenon. We
administered an anonymous online cross-sectional survey to 645 Italian
clinicians. Target of the survey were all medical figures potentially
involved in the management of COVID-19 cases. 369 questionnaires were
returned. 19.5% (n = 72) of respondents were younger than 30 years-old;
49,3% (n = 182) worked in Infectious Diseases, Internal Medicine or
Respiratory Medicine departments, 11.5% (n = 42) in Intensive Care Unit and
7.4% (n = 27) were general practitioner. 70% (n = 261) of respondents
reported that their use of social media to seek medical information
increased during the pandemic. 39.3% (n = 145) consistently consulted
Facebook groups and 53.1% (n = 196) Whatsapp chats. 47% (n = 174) of
respondents reported that information shared on social media had a
consistent impact on their daily practice. In the present study, we found no
difference in social media usage between age groups or medical specialties.
Given the urgent need for scientific update during the present pandemic,
these findings may help understanding how clinicians access new evidences
and implement them in their daily practice.
DOI: https://doi.org/10.1371/journal.pone.0238414
URL: http://pubmed.ncbi.nlm.nih.gov/32881933
Int J Environ Res Public Health. 2020 Aug 31. pii: E6330.
5. Information on the COVID-19 Pandemic in Daily Newspapers' Front Pages:
Case Study of Spain and Italy.
Tejedor S, Cervi L, Tusa F, Portales M, Zabotina M
Spain and Italy are amongst the European countries where the COVID-19
pandemic has produced its major impact and where lockdown measures have been
the harshest. This research aims at understanding how the corona crisis has
been represented in Spanish and Italian media, focusing on reference
newspapers. The study analyzes 72 front pages of El País and El Mundo in
Spain and Italy's Corriere della Sera and La Repubblica, collecting 710 news
items and 3456 data evidences employing a mixed method (both qualitative and
quantitative) based on content analysis and hemerographic analysis. Results
show a predominance of informative journalistic genres (especially brief and
news), while the visual framing emerging from the photographic choice, tend
to foster humanization through an emotional representation of the pandemic.
Politicians are the most represented actors, showing a high degree of
politicization of the crisis.
Keywords: COVID-19; journalism; media; newspapers
DOI: https://doi.org/10.3390/ijerph17176330
URL: http://pubmed.ncbi.nlm.nih.gov/32878092
Asia Pac J Public Health. 2020 Aug 30. 1010539520956428
6. Preference and Trust: An Investigation of Information Source of
COVID-19 Among People Over 50 Years.
Yu N, Jiang Z
A cross-sectional survey that reached 21 out of 34 provinces of China was
conducted during the coronavirus disease 2019 (COVID-19) outbreak in China.
The study discovered different patterns of source preference and trust among
people over 50 years. The data suggested the critical role of television and
family as preferred and trustworthy information sources of the pandemic. The
potential roles of social media and news apps for distributing COVID-19
information were also discovered. Additionally, age, education, marriage
status, health status, and vision health can influence choices of
information sources during a pandemic.
Keywords: COVID-19; information source; pandemic; preference; trust
DOI: https://doi.org/10.1177/1010539520956428
URL: http://pubmed.ncbi.nlm.nih.gov/32864981
CVIR Endovasc. 2020 Oct 18. 3(1): 52
7. Pelvic vein embolization: an assessment of the readability and quality
of online information for patients.
Lee RJ, O'Neill DC, Brassil M, Alderson J, Lee MJ
INTRODUCTION: Pelvic congestion syndrome is a controversial topic. Pelvic
vein embolization is a minimally invasive treatment for pelvic congestion
syndrome. We aimed to assess the quality of information available on the
Internet and determine how accessible information provided by the main IR
societies was to patients.
MATERIALS AND METHODS: The most commonly used term relating to pelvic vein
embolization was searched across the five most-used English language search
engines, with the first 25 web pages returned by each engine included for
analysis. Duplicate web pages, nontext content and web pages behind paywalls
were excluded. Web pages were analyzed for quality and readability using
validated tools: DISCERN score, JAMA Benchmark Criteria, HONcode
Certification, Flesch Reading Ease Score, Flesch-Kincaid Grade Level, and
Gunning-Fog Index.
RESULTS: The most common applicable term was "Pelvic Vein Embolization".
Mean DISCERN quality of information provided by websites is "fair".
Flesh-Kincaid readability tests and Gunning-Fog Index demonstrated an
average "college level" of reading ease. HON code certification was
demonstrated in less than one third of web pages. Professional societies and
scientific journals demonstrated the highest average JAMA and DISCERN
scores, while for-profit organizations and healthcare providers demonstrated
the lowest. Only information from 1 of 3 interventional societies was
included in the first 25 search engine pages.
CONCLUSION: The quality of information available online to patients is
"fair" and outside of scientific journals the majority of web pages do not
meet the JAMA benchmark criteria. These findings call for the production of
high-quality and comprehensible content regarding interventional radiology,
where physicians can reliably direct their patients for information.
Keywords: Embolization; Information; Internet; Online; Patient; Pelvic
congestion syndrome; Pelvic vein
DOI: https://doi.org/10.1186/s42155-020-00143-0
URL: http://pubmed.ncbi.nlm.nih.gov/32886198
Clin Neurol Neurosurg. 2020 Aug 22. pii: S0303-8467(20)30484-4.
8. Health literacy among neurosurgery and other surgical subspecialties:
Readability of online patient materials found with Google.
Behmer Hansen R, Gold J, Lad M, Gupta R, Ganapa S, Mammis A
OBJECTIVE: To both determine whether the most high-yield online patient
materials for surgical specialties meet the 6th grade readability level
recommended by the National Institutes of Health (NIH) and American Medical
Association (AMA), and to discover differences in readability across
specialties. We hypothesize average readability scores will exceed an 11th
grade level.
METHODS: The top five most common procedures for each of seven surgical
specialties (neurological, orthopedic, plastic, general, thoracic,
pediatric, and vascular) were searched using an incognito Google query to
minimize location bias. The text from the top five patient-relevant links
per procedure, excluding Wikipedia, journal articles, and videos, was
extracted and inserted into Readability Studio Software for analysis.
RESULTS: The combined average grade level of materials (± standard
deviation) was: 10.47 ± 2.51 Flesh-Kincaid Grade Level (FKGL), 11-12 New
Dale-Chall (NDC), 10.09 ± 1.97 Simple Measure of Gobbledygook (SMOG), 12 Fry
Graph (FG). Thoracic, neurologic, vascular, plastic, and orthopedic were
least readable (grade level 10+ by all metrics).
CONCLUSIONS: High readability of procedure materials for patients is not
unique to neurosurgery: all specialties exceeded the recommended 6th grade
level by three or more grades. Online patient education materials related to
surgical subspecialties must be written more comprehensibly.
Keywords: Health literacy; Internet; Patient education; Readability;
Surgery
DOI: https://doi.org/10.1016/j.clineuro.2020.106141
URL: http://pubmed.ncbi.nlm.nih.gov/32861037
Cureus. 2020 Aug 01. 12(8): e9511
9. Quality of Online Information Regarding Cervical Cancer.
Dawson JQ, Davies JM, Ingledew PA
Introduction The internet is an important source of health information, and
yet the quality of the resources that patients' access can vary widely.
Previous research has evaluated the quality of information for several types
of cancer; however, this has not yet been done for cervical cancer beyond
treatment information. The goal of this project was to systematically
evaluate the quality of resources for cervical cancer information available
against a range of metrics, including content breadth and accuracy,
readability, and accountability. Methods An internet search was performed
using the term "cervical cancer" using Google and two meta-search engines,
Dogpile and Yippy. The top-100 websites returned across all three engines
were evaluated using a validated structured rating tool. Results Only 32%
of websites disclosed their author and only 38% used citations, while 64% of
websites had been updated in the last two years. Readability was at
university-level or higher for 19% of websites, and high-school level for
78%. Coverage was highest for etiology and risk factors (93% of
websites) and prevention strategies such as pap smears and vaccines (92%);
coverage was lowest for prognosis (49%), staging (52%), side effects
(47%), and follow-up (25%). When a topic was covered the information was
predominantly accurate, and few websites had inaccurate information. At
least one social-media platform was linked to by 79% of websites.
Conclusions This project highlights the strengths and limitations in the
quality of the top-100 informational cervical cancer websites. These
findings can inform the dialogue between health care providers and patients
around selecting and evaluating information resources. These findings can
also inform specific improvements to make online resources for cervical
cancer more accessible, comprehensive, and relevant to patients.
Keywords: cervical cancer; information quality; internet; online health
information; patient education
DOI: https://doi.org/10.7759/cureus.9511
URL: http://pubmed.ncbi.nlm.nih.gov/32879831
J Am Heart Assoc. 2020 Aug 31. e017372
10. Readability of Online Patient Educational Materials for Coronary
Artery Calcium Scans and Implications for Health Disparities.
Rodriguez F, Ngo S, Baird G, Balla S, Miles R, Garg M
Background Coronary artery calcium (CAC) scans can help reclassify risk and
guide patient-clinician shared treatment decisions for cardiovascular
disease prevention. Patients increasingly access online patient educational
materials (OPEMs) to guide medical decision-making. The American Medical
Association (AMA) recommends that OPEMs should be written below a 6th-grade
reading level. This study estimated the readability of commonly accessed
OPEMs on CAC scans. Methods and Results The terms "coronary artery calcium
scan," "heart scan," and "CAC score" were queried using an online search
engine to identify the top 50 commonly accessed websites based on order of
search results on December 17, 2019. Grade-level readability was calculated
using generalized estimating equations, with observations nested within
readability metrics from each website. Results were compared with
AMA-recommended readability parameters. Overall grade-level readability
among all search terms was 10.9 (95% CI, 9.3-12.5). Average grade-level
readability of OPEMs for the search terms "coronary artery calcium scan,"
"heart scan," and "CAC score," was 10.7 (95% CI, 9.0-12.5), 10.5 (95% CI,
8.9-12.1), and 11.9 (95% CI, 10.3-13.5), respectively. Professional society
and news/media/blog websites had the highest average reading grade level of
12.6, while health system websites had the lowest average reading grade
level of 10.0. Less than half of the unique websites (45.3%) included
explanatory images or videos. Conclusions Current OPEMs on CAC scans are
written at a higher reading level than recommended for the general public.
This may lead to patient misunderstanding, which could exacerbate
disparities in cardiovascular health among groups with lower health literacy.
Keywords: coronary artery calcium; health literacy; online patient
educational material
DOI: https://doi.org/10.1161/JAHA.120.017372
URL: http://pubmed.ncbi.nlm.nih.gov/32865121
Clin Rheumatol. 2020 Sep 02.
11. The usefulness and validity of English-language videos on YouTube as
an educational resource for spondyloarthritis.
Elangovan S, Kwan YH, Fong W
BACKGROUND: YouTube is a popular online platform where patients often visit
for information. However, the validity of the content on spondyloarthritis
(SpA) on YouTube is not known.
OBJECTIVES: To evaluate the content, reliability, and quality of the most
viewed English-language YouTube videos on SpA.
METHODS: Keywords "spondyloarthritis," "spondyloarthropathy," and
"ankylosing spondylitis" were searched on YouTube on October 7, 2019. The
top 270 videos were screened. Videos were excluded if they were irrelevant,
in non-English language, or if they had no audio. Total number of views,
duration on YouTube (days), video length, upload date, and number of likes,
dislikes, subscribers, and comments were recorded for videos. A modified
5-point DISCERN tool and the 5-point Global Quality Scale (GQS) score were
used to assess the reliability and quality of the videos.
RESULTS: Two hundred videos were included in the final analysis (62% from
healthcare professionals, 37% from patients, and 2% from news channels).
Useful information, useful patient opinion, misleading patient opinion, and
misleading information comprised o60%, 26%, 11%, and 3% of videos
respectively. Majority of misleading videos were uploaded by patients (82%).
Misleading videos commonly included wrong clinical features and unproven
alternative treatments of SpA. Videos by healthcare professionals had more
useful information, higher reliability, and GQS scores.
CONCLUSIONS: Majority of YouTube videos have useful information on SpA and
are important educational sources to patients. However, rheumatologists
should be aware that misleading patient opinions on alternative therapies
can contain inaccurate information and should hence actively correct these
misinformation during their clinic consults Key Points • The majority of
videos on Spondyloarthritis found on YouTube are deemed useful and are
uploaded by healthcare professionals. • The majority of misleading videos
were uploaded by patients and the main theme of misinformation was on
clinical features and treatment of spondyloarthritis.
Keywords: Ankylosing spondylitis; Patient education; Quality; Social
media; Spondyloarthritis
DOI: https://doi.org/10.1007/s10067-020-05377-w
URL: http://pubmed.ncbi.nlm.nih.gov/32880051
J Med Internet Res. 2020 Sep 03.
12. Using Xigua Video as a Source of Information on Breast Cancer:
Content Analysis.
Pan P, Yu C, Luo H, Li T, Zhou X, Dai T, Tian H, Xiong Y
BACKGROUND: Seeking health information on the Internet is a very popular
trend. Xigua Video, which is a short video platform in China, ranks among
the most accessed websites in the country and hosts an increasing number of
videos with medical information. However, the nature of the videos is
frequently unscientific, misleading, or even harmful.
OBJECTIVE: Little is known about Xigua Video as a source of information on
breast cancer. Thus, the study aimed to investigate the contents, quality,
and reliability of breast cancer-related videos.
METHODS: On February 4, 2020, a search of Xigua Video was made using the
keyword "breast cancer." Two doctors categorized the videos as useful or
misleading information. Furthermore, the reliability and quality of the
videos were assessed using the five-point DISCERN tool and five-point Global
Quality Score (GQS) tool.
RESULTS: Out of the 170 videos selected for the study, 64 (37.6%) were
classified as useful, whereas 106 (62.4%) provided misleading information. A
total of 71 videos (41.8%) were generated by individuals versus 33 videos
(19.4%) contributed by professionals. The topics mainly covered etiology,
anatomy, symptoms, preventions, treatments, and prognosis. Treatments was
the top topic (70%). The reliability score and GQS score of the videos in
the useful information group were high (P < 0.001). No differences were
observed in terms of video length, duration in months, and comments between
the two groups. The number of total views was higher for the misleading
information group (819,478.5 vs. 647,940) but did not reach a level of
statistical significance (P = 0.112). The uploading sources of the videos
were mainly professionals, health information websites, medical
advertisements, and individuals. Statistical differences were found between
uploading source groups in terms of reliability score and GQS score (P
<.001). In terms of total views, video length, duration, and comments, no
statistical differences were indicated among the said groups. However, a
statistical difference was noted between the useful and misleading
information groups with respect to uploading sources (P <.001).
CONCLUSIONS: Although many videos on Xigua Video are related to breast
cancer, a large number contain misleading information. Although such videos
are currently important sources of information for the general population,
the need arises for videos with full and accurate information collated by
professionals for upload to Xigua Video and other social media.
CLINICALTRIAL:
DOI: https://doi.org/10.2196/19668
URL: http://pubmed.ncbi.nlm.nih.gov/32883651
Ir J Med Sci. 2020 Sep 05.
13. Internet search trends and online awareness of skin cancer and
melanoma in the Republic of Ireland and the UK.
Murray G, Hellen R, O'Kane M
DOI: https://doi.org/10.1007/s11845-020-02359-4
URL: http://pubmed.ncbi.nlm.nih.gov/32888167
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