On 8/3/2011 3:21 AM, Mandi Smallhorne wrote: I don’t think it’s a conspiracy accusation – it’s an expression of the rage and frustration felt by CFS patients who long for an answer. They;’ve had one dangled before their eyes and then snatched away. I think it’s possible that the problems have not been well communicated to the lay people in the trenches fighting this disease. Anyone who has had this condition or known someone who has will be very tolerant of their anger – nothing worse than feeling that a very real and utterly debilitating condition is being dismissed constantly as ‘in your head’ etc. ===== Yes. And such a response is two-edged. On the one hand it dismisses physical symptoms and real pain as non-existent if the 'cause' is psychological. On the other hand it is an implicit dismissal of the pain of mental illness. (And a by-product, it puts CFS patients in the position of implicitly 'joining' that dismissal of the pain of mental illness. Regardless of what causes CFS, the pain (as I said above) is real, and to dismiss it as mental is stupid and callous EVEN IF THAT IS CORRECT. Pain is pain from whatever source, and mental conditions are real. Carrol P.S. I have not read other posts in the thread.