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In article <[log in to unmask]>, Margaret Henderson at CSHL
Library <[log in to unmask]> wrote:
 
> ..... a woman asked us to find something on Angelman syndrome
 
 
 
try:
 
 
National Organization for Rare Disorders (NORD)
(New Fairfield, CT)
800 999-NORD
 
 
Angelman Syndrome Foundation
(Gainesville, FL)
(904) 332-3303
 
 
Canadian Angelman Syndrome Society
Priddis, Alberta
(403) 931-2415
 
 
Angelman Syndrome Support Group
Mrs. Sheila Woolven
15 Place Crescent
Waterlooville, NR Portsmouth
Hants, United Kingdom
 
 
 
The best sources for this kind of info:
 
 
NORD (see their web page at: http://www.w2.com/nord1.html
 
 
Exceptional Parent magazine 1-800-E-PARENT to purchase their annual
resource guide ($10.00)
 
 
Physicians Guide to Rare Diseases (second edition just off press, based on
the NORD database)
Dowden Publishing Company 1-201-391-9100