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What a wonderful group you are!  I had about 5 responses in next to no time
so I have some very good information for my patron.
 
Here are two web sites that are useful for those that might not know (I hate
to think I'm the only one who doesn't know about these).
 
http://www-hsl.mcmaster.ca/tomflem/top.html   - this is the 'Health Care
Information Resources Page'
 
 http://www.w2.com/nord1.html   - this is the National Organization of Rare
Diseases
 
Thanks again for everything
Sincerely,
Margaret